The National Pancreas Foundation provides hope for those suffering from pancreatitis and pancreatic cancer through funding cutting edge research, advocating for new and better therapies, and providing support and education for patients, caregivers, and healthcare professionals. The National Pancreas Foundation is a supporter of and key partner in Mission: Cure’s first project, Mission: Cure Pancreatitis.
Patient Worthy is an online media platform that publishes 8-10 rare disease news articles and stories every day- catering specifically to the rare disease community. They connect rare disease patients and caregivers with support, educational resources, up-to-date news, and one another. They feature upcoming patient events, stories and interviews, and updates regarding clinical trials, FDA approvals, etc. Their goal is to amplify patient voices and feature the advocacy groups and research initiatives that serve them.
As a member of this strategic advisory council, Mission: Cure will be working on urgent policy issues by collaborating with both industry and patient organizations to create and advance science-based policy for the rare disease community.
Black Women’s Health Imperative launched the Rare Disease Diversity Coalition to address the extraordinary challenges faced by rare disease patients of color. The Coalition brings together rare disease experts, health and diversity advocates, and industry leaders to identify and advocate for evidence-based solutions to alleviate the disproportionate burden of rare diseases on communities of color.
Cures Within Reach catalyzes repurposing research to quickly and affordably improve patient lives. Repurposing tests existing drugs and devices to create treatments for unsolved diseases.