All Posts By

Sofia Garcia

Clinical TrialsNews
November 17, 2020

Volunteers Needed for Pancreatitis Research Study

Volunteers Needed Precision Care Network is collecting nasal cells to support research focused on improving medical care for people who have been diagnosed with pancreatitis or are at high risk for developing pancreatitis. Donating nasal cells takes less than five minutes. Eligibility Must be 18 years or older and Have a pancreatitis diagnosis, or Be at high risk of developing…
News
November 6, 2020

Drug Development With a Patient Focus

Picture from: National Pancreas Foundation Pancreatitis Externally-Led Patient-Focused Drug Development Meeting Mission: Cure was one of many patient advocacy nonprofit organizations that participated in the development of the very first Voice of the Patient Report, a months-long project led by the National Pancreas Foundation. In March, during the Patient-Focused Drug Development (PFDD) meeting, Co-Founder and pancreatitis patient Eric Golden shared…
BlogNews
October 15, 2020

Patient-Centered Care Models for Pancreatitis Patients

Avi Khullar, Director of Patient Centered Care What are the experiences of individuals suffering from chronic pancreatitis and acute recurrent pancreatitis as they seek care and support? How does this condition change the way that they go about their daily lives? If pancreatic patients could reimagine their ideal care experience, what would that look like? These were some of the…
BlogPatient Stories
October 2, 2020

Seeking Treatment for Chronic Pancreatitis: Laura’s Story

Laura while traveling in Wadi Rum, Jordan Stabbing Pain Leads to Acute Pancreatitis Diagnosis In December 2018, Laura Perry, a 24-year old previously-healthy law student, began experiencing abdominal pain after returning home from a trip to Mexico with her family. While in Mexico, Laura had contracted an infection. Believing that it was nothing serious, her doctor prescribed antibiotics. The antibiotics…
News
September 11, 2020

Survey to Assess the Financial Implications of Pancreatitis

Mission: Cure was established in 2017 to improve patient outcomes, find effective treatments and, ultimately, a cure for pancreatitis. Over the last three years, patients have consistently shared their dismal experience and the financial toll of navigating the medical system in search of a diagnosis and/or a treatment plan while suffering with pain, hopelessness, and poor outcomes. We are conducting…
Blog
September 4, 2020

ICD Codes Linking Pancreatitis to Alcohol Harm Patients. Let’s Change Them.

Key Takeaways Currently, ICD Codes for pancreatitis associate the disease with alcohol consumption, which is scientifically inaccurate. Physicians use a system called ICD-10 codes to identify diagnoses and procedures in patient medical records and for insurance reimbursement. Chronic Pancreatitis has been inaccurately thought to be caused by alcohol. This is now known to be inaccurate, but is still reflected in…
News
August 25, 2020

Moments of Hope Photo/Video Contest

Mission: Cure Moments of Hope Photo/Video Contest We're very excited to release more details soon about our virtual Moments of Hope celebration for a cure. To make the evening even more special, we need your help! Pictures are worth a thousand words, and we want to be able to tell a story about pancreatitis and hope using your photos and…
News
August 20, 2020

Now Hiring: Volunteer Development Intern

About Mission: Cure Mission: Cure was founded in 2017 to find effective treatments and, ultimately, a cure for pancreatitis, an extremely painful, degenerative and costly disease. Led by Megan Golden, a leader in innovative, outcome-based financing such as “Social Impact Bonds,” and Linda Martin, a veteran technology entrepreneur, Mission: Cure is pioneering a new funding model that creates new incentives…
News
August 3, 2020

New Clinical Trial for Chronic Pancreatitis Patients

If you: Have chronic pancreatitis or pancreatic cancer, AND Have been diagnosed with diabetes, Are between the ages of 40 and 85, you may be elegible to participate in a new research study funded by the National Institutes of Health (NIH). The study seeks to develop a blood test that can separate diabetes caused by pancreatic cancer or chronic pancreatitis…
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