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Sofia Garcia

January 20, 2022

Caring for Someone with Pancreatitis

Caring for Someone Suffering from Pancreatitis Aviv, 5, lives in Israel. Her parents are her primary caregivers. "People without pancreatitis don't understand the uncertainty that caregivers and children with pancreatitis have."   Caring for someone with pancreatitis can be difficult. It is especially difficult to care for someone living with a chronic, debilitating condition. Caregiving can include many functions. You…
NewsNewsNews
November 3, 2021

Mission: Cure Selected to Join The Chan Zuckerberg Initiative’s Rare As One Network

October 4, 2018 | Carly Cheung, scientist at the Chan Zuckerberg Biohub in San Francisco, shows Sandra Chipuka and Ernestine Dada Johnson, TechWomen’s Emerging Leaders, tools used in the BSL-1 lab. | Photograph by CZI We are delighted to announce that Mission: Cure has been selected as one of 20 patient-led organizations to join the Rare As One Network. The…
Pain Management
October 28, 2021

Webinar: Meditation for Chronic Pancreatitis Pain

Meditation for Chronic Pancreatitis Pain Pancreatitis pain is the main symptom of chronic pancreatitis. Although meditation is no cure, it can help with pain management and, in some cases, lead to pain relief. Eric Golden, co-founder of Mission: Cure and pancreatitis warrior, uses meditation, along with medications, to help deal with his pain. In this webinar, he talks Dr. Christiane…
DiagnosisPatient Resources
August 26, 2021

Pancreatitis Diagnosis Toolkit

Many patients struggle with getting an accurate pancreatitis diagnosis. Patients recount being dismissed by doctors, spending thousands of dollars on tests, being told they are not really sick, and waiting years for a diagnosis. Our pancreatitis diagnosis toolkit provides an overview about chronic pancreatitis and lists common symptoms and typical tests. To learn more which tests to request from your…
Pain ManagementPatient ResourcesPatient ResourcesPatient ResourcesPatient ResourcesPediatric Pancreatitis
August 26, 2021

Toolkit: Pain Management for Pediatric Pancreatitis Patients

Pain is the number one symptom of pancreatitis. Children living with pancreatitis often have to miss out on school, daily activities, and social bonding opportunities due to pancreatitis-induced pain episodes. Experts agree that pain management strategies can help pediatric patients and families live more high-quality lives. This toolkit provides expert recommendations on pain management for pediatric pancreatitis patients. This pain…
pediatric pancreatitis nutrition
NutritionPediatric Pancreatitis
August 10, 2021

Toolkit: Nutrition for Children with Pancreatitis

Making sure your child is getting all the nutrients they need while living with pancreatitis can be difficult.  Poor nutritional management can lead to additional health concerns such as malnutrition and bone health issues. Mission: Cure has compiled recommendations developed by nutritional and gastrointestinal experts to assist in making sure your child's needs are met.  Read our handout, "Nutritional Tips…
GeneticsPatient Stories
July 8, 2021

Patient Story: Diagnosing Hereditary Pancreatitis: Rhiannon’s Story

Rhiannon Bending, 31, shares her story with hereditary pancreatitis Although Rhiannon's father had chronic pancreatitis, doctors were unaware that hereditary pancreatitis can be passed down through genetics and kept reassuring that her that she will not suffer from the disease. Genetic testing gave her the answers she so badly needed-- she has hereditary chronic pancreatitis. Rhiannon shares the effect this…
GeneticsNewsWebinars: Genetics
June 29, 2021

Webinar: Genetics and Medication

Genetics and Medication: How Your Genes Affect the Medications You Take https://youtu.be/yA0nteCFZFY On June 23rd, 2021, Mission: Cure held a webinar with Ariel Precision Medicine to shed light on the connection between genetics and medication. Solomon Adams, Director of Bioinformatics and Genome Technologies discussed how your genes affect how certain medications (like antidepressants and pain medication) work and how you…
June 18, 2021

Our Commitment to Diversity, Equity, and Inclusion

On June 19th of every year, we commemorate the end of slavery in the United States. In the last hundred years, the healthcare field has made great strides in treating disease, yet many people still receive poor and unequal care. Compared to white people in the United States, people of color have less access to high-quality health care.¹ For people suffering…