Over the course of 35+ interviews, we listened to stories of excruciating pain, anxiety, and hopelessness as individuals and their families grappled with the medical system in search of a diagnosis or even just sufficient care. These conversations highlight the immense impact of pancreatitis on the social, emotional, mental, and financial well-being of individuals and families – challenges that are rarely discussed while managing the physiological aspects of the condition.
- What are the experiences of individuals suffering from chronic pancreatitis and acute recurrent pancreatitis as they seek care and support?
- How does this condition change the way that they go about their daily lives?
- If pancreatic patients could reimagine their ideal care experience, what would that look like?
These were some of the questions that we sought to answer as we spoke with providers, individuals and caregivers of those suffering from chronic pancreatitis and recurrent acute pancreatitis.
We hope that the stories and themes noted in the report will inspire and spark an actionable dialogue with providers, payers, and other stakeholders to push for care practices that drive measurable improvement in patient outcomes and improve all aspects of their well-being and quality of life.