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BlogExocrine Pancreatic InsufficiencyPatient Resources
March 25, 2019

EPI and Pancreatic Enzymes: Expert Doctor Answers Patient Questions

Dr. Steven Freedman of Beth Israel Deaconess Medical Center and Harvard Medical School Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presented on Mission: Cure’s Pancreatitis Patient Webinar on Exocrine Pancreatic Insufficiency (EPI) and Pancreatic Enzyme Replacement Therapy (PERT). EPI is one of the symptoms of pancreatitis. For a more comprehensive overview of EPI,…
Linda Martin
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Blog
December 18, 2020

Exceptional Pancreatitis Care Providers

Exceptional Care Award During our 2020 Moments of Hope party, we asked patients to submit the names of care providers that gave them a Moment of Hope during their disease journey. Pancreatitis is a commonly misunderstood disease, even in the medical community. New science has revealed that chronic pancreatitis is not caused by alcoholism, but rather a combination of environmental and genetic…
Sofia Garcia
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BlogPediatric Pancreatitis
November 29, 2019

Scary Medical Procedures Can Cause PTSD in Kids with Pancreatitis

Key takeaways: •   Medical procedures can be traumatic for children, and this trauma can cause “medical PTSD”– a condition called pediatric medical traumatic stress, or PMTS •   PMTS is being studied in people with chronic pancreatitis and other chronic illnesses •   If children suffer from PMTS, parents can help by finding psychologists experienced in chronic illness, keeping their doctors and social…
Omar Chioua
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BlogNews
October 15, 2020

Patient-Centered Care Models for Pancreatitis Patients

Avi Khullar, Director of Patient Centered Care What are the experiences of individuals suffering from chronic pancreatitis and acute recurrent pancreatitis as they seek care and support? How does this condition change the way that they go about their daily lives? If pancreatic patients could reimagine their ideal care experience, what would that look like? These were some of the…
Sofia Garcia
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Blog
September 4, 2020

ICD Codes Linking Pancreatitis to Alcohol Harm Patients. Let’s Change Them.

Key Takeaways Currently, ICD Codes for pancreatitis associate the disease with alcohol consumption, which is scientifically inaccurate. Physicians use a system called ICD-10 codes to identify diagnoses and procedures in patient medical records and for insurance reimbursement. Chronic Pancreatitis has been inaccurately thought to be caused by alcohol. This is now known to be inaccurate, but is still reflected in…
Sofia Garcia
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BlogPatient Stories
October 2, 2020

Seeking Treatment for Chronic Pancreatitis: Laura’s Story

Laura while traveling in Wadi Rum, Jordan Stabbing Pain Leads to Acute Pancreatitis Diagnosis In December 2018, Laura Perry, a 24-year old previously-healthy law student, began experiencing abdominal pain after returning home from a trip to Mexico with her family. While in Mexico, Laura had contracted an infection. Believing that it was nothing serious, her doctor prescribed antibiotics. The antibiotics…
Sofia Garcia
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Stephen Pandol, MD, is Director of Basic and Translational Research at Cedars-Sinai Medical Center
Alcohol & PancreatitisBlogGeneticsPatient ResourcesTopics
June 5, 2018

Pancreatitis and Alcohol: What’s the Real Connection?

I’ve been researching and treating chronic pancreatitis for decades, so I know firsthand what a complicated disease it is and how many unknowns remain. Answers are finally beginning to emerge, but the research is still very preliminary, underscoring how much more we need to learn. It has become increasingly clear that chronic pancreatitis (CP) is caused by multiple factors. Those…
Dr. Stephen Pandol
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Chronic and recurrent Acute Pancreatitis Pationt Prespectives
Blog
July 26, 2018

Preliminary Results of Patient Survey and Continuing Project

As many of you may know, Mission: Cure recently launched its first patient survey to gain real-world patient perspectives on living with the disease. Although the survey is ongoing, and we ask that patients who have not completed the survey take a moment to do so, we are also excited to share some preliminary insights that we have gathered from…
Megan Golden
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Mission: Cure’s Statement on Racial Equality and Justice We at Mission: Cure stand in solidarity with the Black community, the Black Lives Matter movement, and efforts to end systemic racism. We commit to look into ourselves as individuals and as an organization and to do more to advance anti-racism in everything we do.
Blog
June 11, 2020

Mission: Cure’s Statement on Racial Equality and Justice

We at Mission: Cure are shocked and outraged by the circumstances surrounding the deaths of George Floyd, Breonna Taylor, Tony McDade, Sandra Bland, Ahmaud Arbery and countless other victims of anti-Black violence. We stand in solidarity with the Black community, the Black Lives Matter movement, and efforts to end systemic racism. We commit to addressing racial inequality whenever and wherever…
Gabriela Gil
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