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BlogExocrine Pancreatic Insufficiency (EPI) & Pancreatic EnzymesPatient ResourcesWebinarsWebinars: Exocrine Pancreatic Insufficiency (EPI) & Pancreatic Enzymes
March 25, 2019

EPI AND PANCREATIC ENZYMES: EXPERT DOCTOR ANSWERS PATIENT QUESTIONS

Dr. Steven Freedman of Beth Israel Deaconess Medical Center and Harvard Medical School Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presented on Mission: Cure’s Pancreatitis Patient Webinar on Exocrine Pancreatic Insufficiency (EPI) and Pancreatic Enzyme Replacement Therapy (PERT). EPI is one of the symptoms of pancreatitis. Pancreatic enzymes are a confusing but critically…
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BlogPatient Resources
January 11, 2019

Genetic Testing for Pancreatitis: What We Know Now

Dr. Mark Haupt, MD is the Chief Medical Officer of Ariel Precision Medicine, a company that provides digital health and genomics solutions for complex disorders, like pancreatitis. Dr. Haupt is a Pediatric Pulmonologist who has dedicated his career to helping patients with pancreatic disease through his work in academia, the pharmaceutical industry, and his current work with Ariel. As a…
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BlogGeneticsNewsPatient Resources
December 13, 2018

“Is Pancreatitis in Your Genes?” Webinar Q&A

We had so many questions during our webinar on the genetics of pancreatitis, which can be viewed here, that we could not answer them all during the session. We didn't want to leave questions unanswered, so here are Dr. Mark Haupt and Dr. David Whitcomb's answers to the questions we didn’t get to: (more…)
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BlogPatient Stories
October 15, 2018

Kayla-Ann Keagy: Courage Award Recipient Tells Her Story

At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals living with chronic pancreatitis. While the event as a whole was a verifiable success, raising over $150,000 to support the search for a cure, it was the stories of Matthew Musto (aka blackbear), Kayla-Ann Keagy,…
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Diana and Diego Miranda
BlogPatient Resources
October 12, 2018

Diana & Diego Miranda: Courage Award Recipients Tell Their Stories

At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals living with chronic pancreatitis. While the event as a whole was a verifiable success, raising over $150,000 to support the search for a cure, it was the stories of Matthew Musto (aka blackbear), Kayla-Ann Keagy,…
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BlogPain ManagementPatient Resources
September 27, 2018

New Guidelines for Managing the Pain of Chronic Pancreatitis

Dr. Asbjørn Mohr Drewes, MD, PhD, is a widely-recognized expert in gastroenterology and pain, especially in diseases of the pancreas and oesophagus. Acting as both a clinician and researcher, he has authored 507 peer-reviewed articles, book chapters, and reviews, and is a frequent speaker at international conferences. He is currently the Director of Mech-Sense and Center for Pancreatic Diseases at…
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Hereditary pancreatitis patient, Christine Cataldo, with her family.
BlogPatient Stories
September 5, 2018

Living with Pancreatitis: The Importance of Hope

Interview with Chronic Pancreatitis Patient, Christine Cataldo  In the summer of 2018, Mission: Cure’s intern, Gabriela Gil, sat down with Christine Cataldo, a patient volunteer with Mission: Cure, to learn more about Christine’s experiences living with chronic pancreatitis. Diagnosed with pancreatitis linked to the PRSS1 genetic mutation in 2002, Christine shared stories how her condition was identified, discussed her family’s…
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Blog
July 26, 2018

Preliminary Results of Patient Survey and Continuing Project

As many of you may know, Mission: Cure recently launched its first patient survey to gain real-world patient perspectives on living with the disease. Although the survey is ongoing, and we ask that patients who have not completed the survey take a moment to do so, we are also excited to share some preliminary insights that we have gathered from…
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Blog
July 13, 2018

Introducing Mission: Cure’s First Patient Survey

Here at Mission: Cure, we strive to bring the patients’ voices to the forefront of our work. Our mission is to cure chronic and recurrent acute pancreatitis by using an innovative financing model to incentivize research and development. We are asking for you, patients and caregivers, to take a couple of minutes to fill out our patient survey. We believe that…
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Blog
June 5, 2018

Pancreatitis and Alcohol: What’s the Real Connection?

I’ve been researching and treating chronic pancreatitis for decades, so I know firsthand what a complicated disease it is and how many unknowns remain. Answers are finally beginning to emerge, but the research is still very preliminary, underscoring how much more we need to learn. It has become increasingly clear that chronic pancreatitis (CP) is caused by multiple factors. Those…
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