Skip to main content
search
Category

Blog

Chronic and recurrent Acute Pancreatitis Pationt Prespectives
Blog
August 11, 2021

Pancreatitis Patient Survey: Final Report

As many of you may know, Mission: Cure recently launched its first patient survey to gain real-world patient perspectives on living with the disease. Although the survey is ongoing, and we ask that patients who have not completed the survey take a moment to do so, we are also excited to share some preliminary insights that we have gathered from…
Megan Golden
Love0
BlogCare Framework
May 11, 2021

Care Framework

Last year, the American College of Gastroenterology (ACG) published clinical guidelines to provide an evidence-based practical approach to the diagnosis and management of chronic pancreatitis for the general gastroenterologist. We, at Mission: Cure, commend the efforts of the authors and believe that these guidelines are an important step forward for pancreatitis patients who continue to seek a diagnosis and treatment…
Avi Khullar
Love0
BlogExocrine Pancreatic InsufficiencyPatient ResourcesPatient Stories
February 18, 2021

Blog: Pancreatic Enzymes and Pancreatitis: My Experience

Road towards a pancreatitis diagnosis #Creoninthewild Hawaii My journey with pancreatitis started when I was about 10 years old. Throughout my years in school (elementary, middle and high school), I was misdiagnosed with a “sensitive stomach.” My pain was not taken seriously by doctors. I was sent to several counselors while I was in college because, despite my symptoms, doctors…
Sofia Garcia
Love0
BlogExocrine Pancreatic InsufficiencyPatient ResourcesPatient Stories
March 11, 2021

Blog: My Experience with Pancreatic Enzymes (PERT)

I read Liz’s blog and her journey with exocrine pancreatic insufficiency (EPI) resonated with my own experience. The one difference - since the diagnosis, seven years and counting - I continue to calibrate my enzyme dosage. Here is my experience with pancreatic enzymes. My first (diagnosed) acute pancreatitis attack happened in 1998 and I was diagnosed with chronic pancreatitis in…
Sofia Garcia
Love0
Dr. Asjbørn Mohr Drewes, MD, PhD
BlogPain ManagementPatient ResourcesTopics
September 27, 2018

Blog: New Guidelines for Managing the Pain of Chronic Pancreatitis

Dr. Asbjørn Mohr Drewes, MD, PhD, is a widely-recognized expert in gastroenterology and pain, especially in diseases of the pancreas and oesophagus. Acting as both a clinician and researcher, he has authored 507 peer-reviewed articles, book chapters, and reviews, and is a frequent speaker at international conferences. He is currently the Director of Mech-Sense and Center for Pancreatic Diseases at…
Dr. Asbjørn Mohr Drewes
Love8
BlogExocrine Pancreatic InsufficiencyPatient Resources
March 25, 2019

Expert Q&A: EPI and Pancreatic Enzymes

Dr. Steven Freedman of Beth Israel Deaconess Medical Center and Harvard Medical School Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presented on Mission: Cure’s Pancreatitis Patient Webinar on Exocrine Pancreatic Insufficiency (EPI) and Pancreatic Enzyme Replacement Therapy (PERT). EPI is one of the symptoms of pancreatitis. For a more comprehensive overview of EPI,…
Linda Martin
Love0
BlogPediatric Pancreatitis
November 29, 2019

Blog Post: PTSD in Kids with Pancreatitis

Key takeaways: •   Medical procedures can be traumatic for children, and this trauma can cause “medical PTSD”– a condition called pediatric medical traumatic stress, or PMTS •   PMTS is being studied in people with chronic pancreatitis and other chronic illnesses •   If children suffer from PMTS, parents can help by finding psychologists experienced in chronic illness, keeping their doctors and social…
Omar Chioua
Love0
BlogPain ManagementPatient ResourcesPediatric PancreatitisTopics
November 21, 2019

Blog: Managing Chronic Pain in Pancreatitis

Key points: •   Chronic pain from pancreatitis takes a major toll on patients and their loved ones. •   To effectively treat chronic pancreatitis pain, we need to address the symptoms as well as the impact of pain on patients’ lives.  •   One piece of the solution is self-management, which involves education, lifestyle changes, pain coping skills, and emotional and social…
Omar Chioua
Love0
Stephen Pandol, MD, is Director of Basic and Translational Research at Cedars-Sinai Medical Center
Alcohol & PancreatitisBlogGeneticsPatient ResourcesTopics
June 5, 2018

Blog: Pancreatitis and Alcohol: What’s the Real Connection?

I’ve been researching and treating chronic pancreatitis for decades, so I know firsthand what a complicated disease it is and how many unknowns remain. Answers are finally beginning to emerge, but the research is still very preliminary, underscoring how much more we need to learn. It has become increasingly clear that chronic pancreatitis (CP) is caused by multiple factors. Those…
Dr. Stephen Pandol
Love15
Close Menu
Cookie Policy Privacy Policy