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BlogExocrine Pancreatic InsufficiencyPatient ResourcesPatient Stories
February 18, 2021

Pancreatic Enzymes and Pancreatitis: My Experience

Road towards a pancreatitis diagnosis #Creoninthewild Hawaii My journey with pancreatitis started when I was about 10 years old. Throughout my years in school (elementary, middle and high school), I was misdiagnosed with a “sensitive stomach.” My pain was not taken seriously by doctors. I was sent to several counselors while I was in college because, despite my symptoms, doctors…
Chronic and recurrent Acute Pancreatitis Pationt Prespectives
Blog
July 26, 2018

Pancreatitis Patient Survey

As many of you may know, Mission: Cure recently launched its first patient survey to gain real-world patient perspectives on living with the disease. Although the survey is ongoing, and we ask that patients who have not completed the survey take a moment to do so, we are also excited to share some preliminary insights that we have gathered from…
BlogGeneticsPatient ResourcesTopics
January 11, 2019

Genetic Testing for Pancreatitis: What We Know Now

Dr. Mark Haupt, MD is the Chief Medical Officer of Ariel Precision Medicine, a company that provides digital health and genomics solutions for complex disorders, like pancreatitis. Dr. Haupt is a Pediatric Pulmonologist who has dedicated his career to helping patients with pancreatic disease through his work in academia, the pharmaceutical industry, and his current work with Ariel. As a…
BlogExocrine Pancreatic InsufficiencyPatient ResourcesPatient Stories
March 11, 2021

My Experience with Pancreatic Enzymes (PERT)

I read Liz’s blog and her journey with exocrine pancreatic insufficiency (EPI) resonated with my own experience. The one difference - since the diagnosis, seven years and counting - I continue to calibrate my enzyme dosage. Here is my experience with pancreatic enzymes. My first (diagnosed) acute pancreatitis attack happened in 1998 and I was diagnosed with chronic pancreatitis in…
laura perry
BlogPatient Stories
October 2, 2020

Seeking Treatment for Chronic Pancreatitis: Laura’s Story

Laura while traveling in Wadi Rum, Jordan Stabbing Pain Leads to Acute Pancreatitis Diagnosis In December 2018, Laura Perry, a 24-year old previously-healthy law student, began experiencing abdominal pain after returning home from a trip to Mexico with her family. While in Mexico, Laura had contracted an infection. Believing that it was nothing serious, her doctor prescribed antibiotics. The antibiotics…
icd codes pancreatitis
Blog
September 4, 2020

ICD Codes Linking Pancreatitis to Alcohol Harm Patients. Let’s Change Them.

Key Takeaways Currently, ICD Codes for pancreatitis associate the disease with alcohol consumption, which is scientifically inaccurate. Physicians use a system called ICD-10 codes to identify diagnoses and procedures in patient medical records and for insurance reimbursement. Chronic Pancreatitis has been inaccurately thought to be caused by alcohol. This is now known to be inaccurate, but is still reflected in…
BlogPediatric Pancreatitis
November 29, 2019

Scary Medical Procedures Can Cause PTSD in Kids with Pancreatitis

Key takeaways: •   Medical procedures can be traumatic for children, and this trauma can cause “medical PTSD”– a condition called pediatric medical traumatic stress, or PMTS •   PMTS is being studied in people with chronic pancreatitis and other chronic illnesses •   If children suffer from PMTS, parents can help by finding psychologists experienced in chronic illness, keeping their doctors and social…
Blog
December 18, 2020

Exceptional Pancreatitis Care Providers

Exceptional Care Award During our 2020 Moments of Hope party, we asked patients to submit the names of care providers that gave them a Moment of Hope during their disease journey. Pancreatitis is a commonly misunderstood disease, even in the medical community. New science has revealed that chronic pancreatitis is not caused by alcoholism, but rather a combination of environmental and genetic…
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