Category

Blog

Dr. Mark Haupt
1
BlogPatient Resources
January 11, 2019

Genetic Testing for Pancreatitis: What We Know Now

Dr. Mark Haupt, MD is the Chief Medical Officer of Ariel Precision Medicine, a company that provides digital health and genomics solutions for complex disorders, like pancreatitis. Dr. Haupt is a Pediatric Pulmonologist who has dedicated his career to helping patients with pancreatic disease through his work in academia, the pharmaceutical industry, and his current work with Ariel. As a…
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Megan Golden
0
Blog
October 15, 2018

Kayla-Ann Keagy: Courage Award Recipient Tells Her Story

At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals living with chronic pancreatitis. While the event as a whole was a verifiable success, raising over $150,000 to support the search for a cure, it was the stories of Matthew Musto (aka blackbear), Kayla-Ann Keagy,…
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Megan Golden
4
Diana and Diego Miranda
Blog
October 12, 2018

Diana & Diego Miranda: Courage Award Recipients Tell Their Stories

At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals living with chronic pancreatitis. While the event as a whole was a verifiable success, raising over $150,000 to support the search for a cure, it was the stories of Matthew Musto (aka blackbear), Kayla-Ann Keagy,…
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Dr. Asbjørn Mohr Drewes
8
Blog
September 27, 2018

New Guidelines for Managing the Pain of Chronic Pancreatitis

Dr. Asbjørn Mohr Drewes, MD, PhD, is a widely-recognized expert in gastroenterology and pain, especially in diseases of the pancreas and oesophagus. Acting as both a clinician and researcher, he has authored 507 peer-reviewed articles, book chapters, and reviews, and is a frequent speaker at international conferences. He is currently the Director of Mech-Sense and Center for Pancreatic Diseases at…
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Gabriela Gil
3
Hereditary pancreatitis patient, Christine Cataldo, with her family.
Blog
September 5, 2018

The Importance of Hope

Interview with Chronic Pancreatitis Patient, Christine Cataldo  Earlier this summer, Mission: Cure’s own intern, Gabriela Gil, sat down with Christine Cataldo, a patient volunteer with Mission: Cure, to learn more about Christine’s experiences living with chronic pancreatitis. Diagnosed with pancreatitis linked to the PRSS1 genetic mutation in 2002, Christine shared stories how her condition was identified, discussed her family’s relationship…
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Megan Golden
0
Blog
July 26, 2018

Preliminary Results of Patient Survey and Continuing Project

As many of you may know, Mission: Cure recently launched its first patient survey to gain real-world patient perspectives on living with the disease. Although the survey is ongoing, and we ask that patients who have not completed the survey take a moment to do so, we are also excited to share some preliminary insights that we have gathered from…
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Megan Golden
0
Blog
July 13, 2018

Introducing Mission: Cure’s First Patient Survey

Here at Mission: Cure, we strive to bring the patients’ voices to the forefront of our work. Our mission is to cure chronic and recurrent acute pancreatitis by using an innovative financing model to incentivize research and development. We are asking for you, patients and caregivers, to take a couple of minutes to fill out our patient survey. We believe that…
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Dr. Stephen Pandol
15
Blog
June 5, 2018

Pancreatitis and Alcohol: What’s the Real Connection?

I’ve been researching and treating chronic pancreatitis for decades, so I know firsthand what a complicated disease it is and how many unknowns remain. Answers are finally beginning to emerge, but the research is still very preliminary, underscoring how much more we need to learn. It has become increasingly clear that chronic pancreatitis (CP) is caused by multiple factors. Those…
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