Mission: Cure's most recent webinar is now online: Pancreatitis Pain: The Latest Medical & Policy Perspectives on Opioids Watch It Now! On this webinar, Kate Nicholson, J.D., a civil rights attorney, pain patient advocate, and expert on the so-called opioid or overdose crisis, and Dr. Eva Szigethy, a leading UPMC psychiatrist focused on the management of chronic pain and psychotropic medication…
November 21, 2019
Managing Chronic Pain in Pancreatitis
Key points: • Chronic pain from pancreatitis takes a major toll on patients and their loved ones. • To effectively treat chronic pancreatitis pain, we need to address the symptoms as well as the impact of pain on patients’ lives. • One piece of the solution is self-management, which involves education, lifestyle changes, pain coping skills, and emotional and social…
November 6, 2019
Scary Medical Procedures Can Cause PTSD in Kids with Pancreatitis
Key takeaways: • Medical procedures can be traumatic for children, and this trauma can cause “medical PTSD”-- a condition called pediatric medical traumatic stress, or PMTS • PMTS is being studied in people with chronic pancreatitis and other chronic illnesses • If children suffer from PMTS, parents can help by finding psychologists experienced in chronic illness, keeping their doctors and…
September 5, 2019
Mission: Cure Update: PancreasFest and Progress
PancreasFest 2019 unveiled promising scientific discoveries and exciting collaboration opportunities, and Mission: Cure was there! Mission: Cure's Team at PancreasFest 2019. Big thanks to our amazing interns from Brown University and Amy Jensen who shared her story of living undiagnosed with chronic pancreatitis. Yes, PancreasFest is the name of a scientific conference held annually in Pittsburgh, PA in July where…
Dr. Steven Freedman of Beth Israel Deaconess Medical Center and Harvard Medical School Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presented on Mission: Cure’s Pancreatitis Patient Webinar on Exocrine Pancreatic Insufficiency (EPI) and Pancreatic Enzyme Replacement Therapy (PERT). EPI is one of the symptoms of pancreatitis. Pancreatic enzymes are a confusing but critically…
March 8, 2019
Pancreatic Enzyme Replacement Therapy – New Information for Pancreatitis Patients on Treating EPI
Busting the Myths about Pancreatic Enzymes for Pancreatitis and EPI Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presents Busting the Myths about Pancreatic Enzymes for Pancreatitis. In this webinar, the fifth in Mission: Cure’s Patient and Family Webinar Series, Dr. Freedman explains: What causes exocrine pancreatic insufficiency (EPI)? How is EPI diagnosed and treated? When…
January 11, 2019
Genetic Testing for Pancreatitis: What We Know Now
Dr. Mark Haupt, MD is the Chief Medical Officer of Ariel Precision Medicine, a company that provides digital health and genomics solutions for complex disorders, like pancreatitis. Dr. Haupt is a Pediatric Pulmonologist who has dedicated his career to helping patients with pancreatic disease through his work in academia, the pharmaceutical industry, and his current work with Ariel. As a…
December 13, 2018
“Is Pancreatitis in Your Genes?” Webinar Q&A
We had so many questions during our webinar on the genetics of pancreatitis, which can be viewed here, that we could not answer them all during the session. We didn't want to leave questions unanswered, so here are Dr. Mark Haupt and Dr. David Whitcomb's answers to the questions we didn’t get to: (more…)
December 9, 2018
Curing Pancreatitis: It’s Time for a New Approach!
https://youtu.be/BOmLjiVIX6c On December 8th, Mission: Cure hosted an informational webinar for chronic and recurrent acute pancreatitis patients, their families and clinicians on their new approach to curing pancreatitis. It featured co-directors Megan Golden and Linda Martin, who gave presentations on the gap Mission: Cure is working to address, their innovative financing model, and how patients and families can get involved…
https://www.youtube.com/watch?v=dLrEmdmgaLQ&t=5s Pancreatitis is Often Caused by Genetics In November 2018, Mission: Cure hosted a webinar for chronic and recurrent acute pancreatitis patients on new genetic discoveries related to pancreatitis. It featured presentations by Dr. David Whitcomb of the University of Pittsburgh Medical Center and Dr. Mark Haupt of Ariel Precision Medicine, experts in pancreatitis genetics. The doctors answered many questions…