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BlogPain ManagementPatient ResourcesPediatric PancreatitisTopics
November 21, 2019

Managing Chronic Pain in Pancreatitis

Key points: •   Chronic pain from pancreatitis takes a major toll on patients and their loved ones. •   To effectively treat chronic pancreatitis pain, we need to address the symptoms as well as the impact of pain on patients’ lives.  •   One piece of the solution is self-management, which involves education, lifestyle changes, pain coping skills, and emotional and social…
Omar Chioua
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BlogPediatric Pancreatitis
November 6, 2019

Scary Medical Procedures Can Cause PTSD in Kids with Pancreatitis

Key takeaways: •   Medical procedures can be traumatic for children, and this trauma can cause “medical PTSD”-- a condition called pediatric medical traumatic stress, or PMTS •   PMTS is being studied in people with chronic pancreatitis and other chronic illnesses •   If children suffer from PMTS, parents can help by finding psychologists experienced in chronic illness, keeping their doctors and…
Omar Chioua
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Shows Mission: Cure's team at PancreasFest 2019.
Clinical TrialsGeneticsNewsPatient StoriesRepurposing Drugs
September 5, 2019

Mission: Cure Update: PancreasFest and Progress

PancreasFest 2019 unveiled promising scientific discoveries and exciting collaboration opportunities, and Mission: Cure was there! Mission: Cure's Team at PancreasFest 2019. Big thanks to our amazing interns from Brown University and Amy Jensen who shared her story of living undiagnosed with chronic pancreatitis. Yes, PancreasFest is the name of a scientific conference held annually in Pittsburgh, PA in July where…
Megan Golden
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BlogExocrine Pancreatic InsufficiencyPatient Resources
March 25, 2019

EPI and Pancreatic Enzymes: Expert Doctor Answers Patient Questions

Dr. Steven Freedman of Beth Israel Deaconess Medical Center and Harvard Medical School Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presented on Mission: Cure’s Pancreatitis Patient Webinar on Exocrine Pancreatic Insufficiency (EPI) and Pancreatic Enzyme Replacement Therapy (PERT). EPI is one of the symptoms of pancreatitis. Pancreatic enzymes are a confusing but critically…
Linda Martin
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Exocrine Pancreatic InsufficiencyNewsPatient ResourcesTopicsWebinarsWebinars: Exocrine Pancreatic Insufficiency (EPI) & Pancreatic Enzymes
March 8, 2019

Pancreatic Enzyme Replacement Therapy – New Information for Pancreatitis Patients on Treating EPI

Busting the Myths about Pancreatic Enzymes for Pancreatitis and EPI Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presents Busting the Myths about Pancreatic Enzymes for Pancreatitis. In this webinar, the fifth in Mission: Cure’s Patient and Family Webinar Series, Dr. Freedman explains: What causes exocrine pancreatic insufficiency (EPI)? How is EPI diagnosed and treated? When…
Megan Golden
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BlogGeneticsPatient ResourcesTopics
January 11, 2019

Genetic Testing for Pancreatitis: What We Know Now

Dr. Mark Haupt, MD is the Chief Medical Officer of Ariel Precision Medicine, a company that provides digital health and genomics solutions for complex disorders, like pancreatitis. Dr. Haupt is a Pediatric Pulmonologist who has dedicated his career to helping patients with pancreatic disease through his work in academia, the pharmaceutical industry, and his current work with Ariel. As a…
Dr. Mark Haupt
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GeneticsNewsPatient ResourcesRepurposing DrugsWebinars
December 9, 2018

Curing Pancreatitis: It’s Time for a New Approach!

https://youtu.be/BOmLjiVIX6c On December 8th, Mission: Cure hosted an informational webinar for chronic and recurrent acute pancreatitis patients, their families and clinicians on their new approach to curing pancreatitis. It featured co-directors Megan Golden and Linda Martin, who gave presentations on the gap Mission: Cure is working to address, their innovative financing model, and how patients and families can get involved…
Megan Golden
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GeneticsPatient ResourcesWebinarsWebinars: Genetics
November 14, 2018

Pancreatitis and Genetics: New Science Shows Pancreatitis Likely to be Hereditary

https://www.youtube.com/watch?v=dLrEmdmgaLQ&t=5s Pancreatitis is Often Caused by Genetics In November 2018, Mission: Cure hosted a webinar for chronic and recurrent acute pancreatitis patients on new genetic discoveries related to pancreatitis. It featured presentations by Dr. David Whitcomb of the University of Pittsburgh Medical Center and Dr. Mark Haupt of Ariel Precision Medicine, experts in pancreatitis genetics. The doctors answered many questions…
Megan Golden
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Dr. Asjbørn Mohr Drewes, MD, PhD
BlogPain ManagementPatient ResourcesTopics
September 27, 2018

New Guidelines for Managing the Pain of Chronic Pancreatitis

Dr. Asbjørn Mohr Drewes, MD, PhD, is a widely-recognized expert in gastroenterology and pain, especially in diseases of the pancreas and oesophagus. Acting as both a clinician and researcher, he has authored 507 peer-reviewed articles, book chapters, and reviews, and is a frequent speaker at international conferences. He is currently the Director of Mech-Sense and Center for Pancreatic Diseases at…
Dr. Asbjørn Mohr Drewes
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