Category

Topics

BlogPediatric Pancreatitis
November 6, 2019

Scary Medical Procedures Can Cause PTSD in Kids with Pancreatitis

Key takeaways: •   Medical procedures can be traumatic for children, and this trauma can cause “medical PTSD”-- a condition called pediatric medical traumatic stress, or PMTS •   PMTS is being studied in people with chronic pancreatitis and other chronic illnesses •   If children suffer from PMTS, parents can help by finding psychologists experienced in chronic illness, keeping their doctors and…
Omar Chioua
Love0
BlogNewsPain ManagementPatient ResourcesWebinarsWebinars: Pain Management
October 28, 2019

Pancreatitis Pain: A Medical Approach with a Patient Focus

Pancreatitis Pain: A Medical Approach with a Patient Focus If you or a loved one suffer from chronic pain from pancreatitis, you won't want to miss the second in Mission: Cure’s series on managing chronic pancreatitis pain. The first webinar in this series discussed a psychological approach called pain self-management. In this webinar, Dr. Steven Freedman discussed a range of…
Omar Chioua
Love0
Depicting a child suffering from chronic pain on a couch.
NewsPain ManagementPatient ResourcesWebinarsWebinars: Pain Management
September 6, 2019

Pancreatitis and Chronic Pain: How Can I Manage?

On this Mission: Cure webinar, Dr. Tonya Palermo discusses pain self-management techniques If you or a family member have chronic pain from pancreatitis, Mission: Cure’s webinar with Dr. Tonya Palermo will be helpful as it explores the impact of chronic pain on children, adults and families dealing with pancreatitis. “Chronic Pain and Pancreatitis” was selected as the topic for this…
Omar Chioua
Love0
Shows Mission: Cure's team at PancreasFest 2019.
Clinical TrialsGeneticsNewsPatient StoriesRepurposing Drugs
September 5, 2019

Mission: Cure Update: PancreasFest and Progress

PancreasFest 2019 unveiled promising scientific discoveries and exciting collaboration opportunities, and Mission: Cure was there! Mission: Cure's Team at PancreasFest 2019. Big thanks to our amazing interns from Brown University and Amy Jensen who shared her story of living undiagnosed with chronic pancreatitis. Yes, PancreasFest is the name of a scientific conference held annually in Pittsburgh, PA in July where…
Megan Golden
Love0
BlogExocrine Pancreatic InsufficiencyPatient Resources
March 25, 2019

EPI and Pancreatic Enzymes: Expert Doctor Answers Patient Questions

Dr. Steven Freedman of Beth Israel Deaconess Medical Center and Harvard Medical School Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presented on Mission: Cure’s Pancreatitis Patient Webinar on Exocrine Pancreatic Insufficiency (EPI) and Pancreatic Enzyme Replacement Therapy (PERT). EPI is one of the symptoms of pancreatitis. Pancreatic enzymes are a confusing but critically…
Linda Martin
Love0
Exocrine Pancreatic InsufficiencyNewsPatient ResourcesTopicsWebinarsWebinars: Exocrine Pancreatic Insufficiency (EPI) & Pancreatic Enzymes
March 8, 2019

Pancreatic Enzyme Replacement Therapy – New Information for Pancreatitis Patients on Treating EPI

Busting the Myths about Pancreatic Enzymes for Pancreatitis and EPI Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presents Busting the Myths about Pancreatic Enzymes for Pancreatitis. In this webinar, the fifth in Mission: Cure’s Patient and Family Webinar Series, Dr. Freedman explains: What causes exocrine pancreatic insufficiency (EPI)? How is EPI diagnosed and treated? When…
Megan Golden
Love3
BlogGeneticsPatient ResourcesTopics
January 11, 2019

Genetic Testing for Pancreatitis: What We Know Now

Dr. Mark Haupt, MD is the Chief Medical Officer of Ariel Precision Medicine, a company that provides digital health and genomics solutions for complex disorders, like pancreatitis. Dr. Haupt is a Pediatric Pulmonologist who has dedicated his career to helping patients with pancreatic disease through his work in academia, the pharmaceutical industry, and his current work with Ariel. As a…
Dr. Mark Haupt
Love1
GeneticsNewsPatient ResourcesRepurposing DrugsWebinars
December 9, 2018

Curing Pancreatitis: It’s Time for a New Approach!

https://youtu.be/BOmLjiVIX6c On December 8th, Mission: Cure hosted an informational webinar for chronic and recurrent acute pancreatitis patients, their families and clinicians on their new approach to curing pancreatitis. It featured co-directors Megan Golden and Linda Martin, who gave presentations on the gap Mission: Cure is working to address, their innovative financing model, and how patients and families can get involved…
Megan Golden
Love2
GeneticsPatient ResourcesWebinarsWebinars: Genetics
November 14, 2018

Pancreatitis and Genetics: New Science Shows Pancreatitis Likely to be Hereditary

https://www.youtube.com/watch?v=dLrEmdmgaLQ&t=5s Pancreatitis is Often Caused by Genetics In November 2018, Mission: Cure hosted a webinar for chronic and recurrent acute pancreatitis patients on new genetic discoveries related to pancreatitis. It featured presentations by Dr. David Whitcomb of the University of Pittsburgh Medical Center and Dr. Mark Haupt of Ariel Precision Medicine, experts in pancreatitis genetics. The doctors answered many questions…
Megan Golden
Love2