Clinical Trials — When you participate in a clinical trial you help pave the way for new treatments

What is a clinical trial?
A clinical trial is a critical step in the process of getting a new treatment approved so that it can be given to patients. After a drug is thoroughly tested in a lab, a clinical trial is designed to test it and make sure that it is effective and safe, and has the desired effect on the condition it is intended to treat. Many drugs never get off the ground because there are not enough volunteers. Don’t let that happen with new pancreatitis treatments. You have the power to propel research and development toward a cure! Learn more about what is involved in these pancreatitis clinical trials to see if they are right for you.

WebMAP CP

Researchers at Seattle Children’s Hospital want to learn more about pain management strategies to help youth with chronic pancreatitis. The study might be a good fit for you if you/your child is between 10 and 17 years old and has chronic or acute recurring pancreatitis. Families who participate will answer questions about pain, mood, sleep, and everyday life at 3 times over 9 months and use a website for 8-12 weeks, which might help with managing pain. Families will receive $100 for each completed assessment ($300 in total). Results from this study may help other children who have chronic pain. To participate in this study or learn more, please contact the study team at 1-855-932-6272 or palermolab@seattlechildrens.org.

Precision Care Network

Precision Care Network is collecting nasal cells to support research focused on improving medical care for people who have been diagnosed with pancreatitis or are at high risk for developing pancreatitis. Donating nasal cells takes less than five minutes.

Eligibility

  • Must be 18 years or older and
  • Have a pancreatitis diagnosis, or
  • Be at high risk of developing pancreatitis

Compensation

  • You will receive $25 per collection for each nostril (up to $50.00) for your participation
  • You may have the option to donate saliva

Qualification

To see if you may qualify, email research@precisioncn.org with the subject like, “Pancreatitis Research Qualification”, or call (919) 590-8108.

INSPPIRE 2 Patient Input Study

You are invited to take part in a research study survey. The goal of the study is to look for ways to improve the quality of life of children who have pancreatitis and their families. We want to know how pancreatitis affects your child’s body, how they feel, your family, friends, school, and activities. We want to know which areas you would like us to study and in which areas you would like help to improve.

If you agree to take part in this study, you will complete a one-time 15 minute survey.

This study is being conducted by the University of Iowa Department of Pediatrics. The research will take place wherever you decide to complete the survey.

If you have any questions about the research study itself, please contact Gretchen Cress, (319) 353-4544. 

You may be eligible for this study if you are the parent of a child who has pancreatitis, a child who has pancreatitis or the brother or sister of a child with pancreatitis. Participants will be asked to enter their age and relationship to the person who has pancreatitis into the survey to determine their eligibility. Any child taking the survey must be at least 10 years old. A parent must give permission for children 10-17 years old to participate in this study. 

There are no benefits to participating in this study. 

If interested, please click on this link: https://redcap.icts.uiowa.edu/redcap/surveys/?s=94H3YPAPW9

SHARP

Researchers at the Medical University of South Carolina are researching whether a procedure called Endoscopic Retrograde CholangioPancreatography (ERCP) with sphincterotomy reduces the risk of pancreatitis or the number of recurrent pancreatitis episodes in patients with pancreas divisum. ERCP with sphincterotomy is a procedure where doctors used a combination of x-rays and an endoscope (a long flexible lighted tube) to find the opening of the duct where fluid drains out of the pancreas. Adults 18 years and older who have been diagnosed with pancreas divisum, have had at least two episodes of pancreatitis within the last 24 months, and are candidates for the ERCP with sphincterotomy procedure may be eligible to participate. Participants will have follow up visits 30 days after the procedure, 6 months after the procedure, and continuing every 6 months until a maximum follow-up period of 48 months.  There are 16 sites for the trial. For more information, contact Dr. Gregory Cote at 843-792-6999 or cotea@musc.edu.