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News from Mission: Cure

Moments of Hope 2021

By momentsofhope, News

Moments of Hope

Virtual Gala

Celebrating Pancreatitis Warriors

October 7th, 2021

5pm PT / 8pm ET

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What to Expect

An interactive social hour and program where you can video chat with other guests  in real-time followed by a fun, virtual party featuring patient storiesgames, and a live auction

How You Will Make an Impact

Your donations contribute to all three of Mission: Cure’s core programs designed to dramatically improve the lives of all pancreatitis warriors

Finding a Cure

We are advancing new research and clinical studies for genetically-driven pancreatitis. With your support, we are closer than ever to finding effective treatments.

Improving Patient Care

Mission: Cure is reimagining clinical care to drive measurable improvement in patient outcomes and experience for individuals suffering from chronic and recurrent acute pancreatitis.

Providing Patient Education

Our patient education program inspires and engages patients and caregivers across the globe with accessible, high-value tools to effectively manage their disease. 

Platinum Sponsors

Aaron & Nancy Marcus

Gold Sponsors

Silver Sponsors

Bronze Sponsors

Supporting Sponsors

Special Thank You

About Us

MISSION

Beginning with chronic pancreatitis, we are committed to advancing new therapies and accelerating cures—within ten years.

VISION

We envision a world where all people dealing  with complex or chronic illnesses have access to high quality care and lifesaving treatments.

WHO WE SERVE

We serve patients & communities affected by recurrent acute and chronic pancreatitis. Our impact extends to disease research and development and improved healthcare, applying innovative financing models to accelerate new therapies and cures that will measurably improve patients’ lives.

Frequently Asked Questions

What will Moments of Hope consist of?

  • The first 50 minutes will be a social hour hosted on Remo. During the social hour, you’ll be able to “drop in” on a table of your choice. Tables will be labeled according to Table Captain’s names, but no one is restricted to stay at one table. Feel free to move around, say hi, and make new friends. During the social hour, you will see others and be seen by others (unless you choose to not enable your camera).
  • After the social hour, we’ll provide you with a link to our YouTube Live event. During this event, you will not be seen by anyone. You can still participate in the YouTube chat.
  • During the event, we will have games, a live auction, patient stories, and awards.

Will the event be entirely online?

  • Yes! We have patients, family members, and supporters from all over the globe and a virtual event accommodates the most people at once. We’re happy to answer any questions about accessibility, registration, or event logistics: info@mission-cure.org

Do I have to register to attend?

  • Yes. If you don’t register your email, you will not be able to receive event correspondence that includes important information like your unique bidding link, Remo link, or the YouTube Live link.

Do I have to donate to attend? 

  • No, the party is free to attend! However, donations are strongly encouraged. All proceeds help us get one step closer to finding a cure for pancreatitis.

How does the referral system work? 

  • The people who get the most people to attend by September 26th will receive a special gift box as a thank you for helping us make this the biggest pancreas party of the year.

 

 

Webinar: Genetics and Medication

By Genetics, News, Patient Resources, Webinars, Webinars: Genetics

Genetics and Medication: How Your Genes Affect the Medications You Take

On June 23rd, 2021, Mission: Cure held a webinar with Ariel Precision Medicine to shed light on the connection between genetics and medication. Solomon Adams, Director of Bioinformatics and Genome Technologies discussed how your genes affect how certain medications (like antidepressants and pain medication) work and how you can work with your medical provider to get the right prescription and dosage. You can now view this webinar online to learn about:

  • Pharmacogenomics: What is it? What are the benefits and how can I get pharmacogenomics (PGx) testing done?
  • Talking to your provider about pharmacogenomics testing: How can I discuss this with my medical provider to receive a prescription and dosage tailored to my genetic makeup?

Webinar Speaker: 

 

Solomon Adams, PharmD, PhD is a pharmacogenomics expert, developer, educator and bioinformaticist who has supported multiple clinical implementations of pharmacogenomics.

Click here to download the Fact Sheet and Discussion Guide

Download (PDF, 181KB)

Click here to download the webinar slides

Download (PPTX, 7.47MB)

Our Commitment to Diversity, Equity, and Inclusion

By News
On June 19th of every year, we commemorate the end of slavery in the United States. In the last hundred years, the healthcare field has made great strides in treating disease, yet many people still receive poor and unequal care. Compared to white people in the United States, people of color have less access to high-quality health care.¹ For people suffering from pain—which includes almost everyone in the pancreatitis community—the inequities are severe.  Black people are less likely to have their pain taken seriously, less likely to have their pain recorded accurately in their medical record, and less likely to get effective pain treatments.²

 

Today, we want to highlight the disproportionate impact of pancreatic disease, including pancreatitis, on Black, Indigenous, and people of color.

Read More

FREE WEBINAR: Genetics and Medication: How Your Genes Affect the Medications You Take

By News

Genetics and Medication

How Your Genes Affect the Medications You Take

Please register for Mission: Cure’s next webinar
Wednesday, June 23, 2021
2:00 p.m. EST 

Have you ever wondered why some medications don’t always work as well as they should? One of the reasons may be your genetics.

In this webinar, you will learn about how your genes can influence how your body responds to medications. This growing field, called ‘pharmacogenomics’, can help your medical care providers make more informed decisions about how to safely prescribe medications tailored to your specific genetic variations.

Learn about:

  • Reasons why medications don’t always work as well as they should
  • How your genes can affect the way your body responds to certain medications
  • How pharmacogenomics testing can help
  • What to ask your healthcare provider about pharmacogenomics testing

Solomon Adams, PharmD, PhD

Director of Bioinformatics and Genome Technologies, Ariel Precision Medicine

Introducing Mission: Cure’s 2021 Summer Intern Cohort

By News

We are thrilled to introduce this year’s summer intern cohort. The interns hail from a wide variety of institutions, cities, and professional and academic backgrounds. This year’s interns will work on a number of projects including drug repurposing, communications, nonprofit operations, grant management, and patient-centered care models.

Mariel Priven is a rising junior at Tufts University majoring in Community Health and pursuing minors in Economics and Latin American Studies. Mariel is passionate about health equity, journalism, and learning languages. She joined Mission: Cure to contribute to its goals of developing effective patient-centered care and improving the lives of those with pancreatitis.


Emmanuel Oshodi is a student at the University of Rochester, where he majors in Microbiology and minors in Psychology. Currently residing in New York, Emmanuel joined Mission: Cure as an intern to help bring more attention to chronic pancreatitis through research. He is passionate about equality in patient care and clinical trials as he strives to ensure all patients receive appropriate care regardless of their background.


Julia Anne Chan is a rising second-year graduate student at UC Berkeley’s School of Public Health. Her concentration is in Health Policy and Management. She obtained her undergraduate degree from UCLA with a B.A. in English Literature. She was working at The Arthur Ashe Student Health and Wellness Center at UCLA for a little over 7 years before switching gears to pursue her graduate degree. Her background includes project management, insurance and healthcare administration. She is passionate about health equity, affordability and patient-centered care models. Julia is eager and excited to work with Mission: Cure this summer and looks forward to what this experience may bring.


Alexander Kim is a rising senior Communications and Media major at the University of Michigan. Alex is particularly interested in utilizing the photographic medium with graphic design in bettering communication and information translation between organizations and mass audiences in the hope of more ethical and inclusive advertising. When not at work, Alex enjoys going to jazz clubs and playing the acoustic guitar.


Nathalie Rataj has been a communications intern at Mission: Cure since spring 2021, and will continue working alongside the Communications Coordinator during the summer. She holds a Bachelor of Cultural and Social Anthropology from the University of Vienna and is currently pursuing a Master in International Relations at Central European University in Vienna, Austria.

 


Leo Caronchi is a current 10th grader at Naples High School and will be moving up to 11th grade next year. He is interested in computer science and engineering. Leo joined Mission Cure because he wants to learn more about pancreatitis and prepare himself for the future.

May 2021 Newsletter

By News
Chronic pancreatitis patient Ashlynn Nieve (18) shares her story with this terrible disease. She talks about how long she had to wait for her diagnosis, how her chronic pain often kept her from attending school, and how she coped with prejudice and stigma without losing hope.

Read More

Video Guide: Dosing Pancreatic Enzymes for Adults

By Exocrine Pancreatic Insufficiency, News, Patient Resources

Correct dosing of pancreatic enzymes is a big challenge for adults who suffer from EPI. We’ve heard from patients that once they receive they are told they have EPI, they are not guided or walked through what this means for them going forward. When are they supposed to take their pills? How do they know if they’re on the right dose?

In light of this, we’ve put together a video with Dr. Steven Freedman, a leading expert in pancreas disease and cystic fibrosis in adults. This short, 5-minute guide will answer all the aforementioned questions and more. We hope that, after watching this video, patients walk away with a better understanding of exocrine pancreatic insufficiency and pancreatic enzyme replacement therapy (PERT). We’ve also included a summary of the video so you can follow along as Dr. Freedman discusses the dosing of pancreatic enzymes.


Read More

pancreatitis diagnosis webinar

Watch our Webinar on Pancreatitis Diagnosis: Living With Pancreatitis

By News, Patient Resources, Symptoms of Pancreatitis, Webinars

Living with Pancreatitis: Navigating Your Diagnosis

On Mission:Cure’s March 10th, 2021 webinar,  Interventional Gastroenterologist and Endosonographer Dr Eli Penn of Atrium-Navicent Health System discussed best practices for patients who are searching for an accurate diagnosis that explains their gastrointestinal symptoms. Melissa Mutz, a wife, mother, and chronic pancreatitis survivor, shares her story and walks us through how to achieve an effective doctor-patient relationship. You can now view this webinar online to learn about:

  • Pancreatitis diagnosis: how do doctors know whether your pancreas is inflamed? Which tests can you ask for?

  • Causes of pancreatic inflammation. (Hint: it’s not alcohol consumption!)

Our Webinar Speakers: 

living with pancreatitis

D. Eli Penn, MD has been practicing for nearly a decade and trained at the Medical University of South Carolina and the University of Florida. He has a reputation for dedication to his patients and has expertise in the endoscopic management of GERD, chronic pancreatitis, gastroparesis, and management of inflammatory bowel disease.

 

living with pancreatitis

Melissa Mutz is married to her husband, Michael and loves being a stay at home mom to her two children, Luke (3) and Ella Grace (4 months). She has suffered from hereditary pancreatitis for 20+ years and most recently had the TPIAT operation at MUSC performed by Dr Katherine Morgan on October 31,2019. She is under the expert care of Dr Eli Penn and is currently pain free from the disease.

Click here to download the patient toolkit.

Download (PDF, 141KB)

Click here to download the webinar slides

Download (PDF, 4.28MB)

Patient Advocacy Resources

By News, Patient Resources

Air Charity Network

Air Charity Network provides access for people in need who are seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis. Air Charity Network serves all 50 states and its volunteer pilots utilize their own aircraft, fuel and time to provide free air transportation to medical facilities for citizens who are financially distressed or otherwise unable to travel on public transportation.

More Information

Patient Advocate Foundation

Patient Advocate Foundation is a non-profit charity that provides direct services to patients with chronic, life threatening and debilitating diseases to help access care and treatment recommended by their doctor.

More Information

Mercy Medical Angels

Mercy Medical Angels provides free transportation to medical care for patients diagnosed with life-threatening diseases or serious health issues.  On the ground with gas cards, bus and train tickets and in the air with trips flown by volunteer pilots and the commercial airlines Mercy Medical Angels ensures that no one in need is denied medical care because they don’t have transportation.

More Information

Now Hiring: Summer 2021 Volunteer Communications Internship

By News

About Mission: Cure

Mission: Cure was founded in 2017 to find effective treatments and, ultimately, a cure for pancreatitis, an extremely painful, degenerative and costly disease. Led by Megan Golden, a leader in innovative, outcome-based financing such as “Social Impact Bonds,” and Linda Martin, a veteran technology entrepreneur, Mission: Cure is pioneering a new funding model that creates new incentives for patient outcomes. Innovation in curing disease is even more needed in the post-COVID-19 world.

Job Description

Position Summary

This internship is an exciting opportunity for anyone interested in applying communications skills and strategies to the world of public health, healthcare, and curing disease. As a young nonprofit organization, Mission: Cure offers a unique opportunity to gain insight on nonprofit development, growth, and operational functions. The intern(s) will work closely with the Communications and Programs Coordinator to develop, enhance, and put into practice communications and outreach strategies. Mission: Cure seeks hard workers and creative thinkers interested in healthcare policy, disease curing, communications, marketing, graphic design, and data analytics. While the intern(s) will be working alongside the Communications and Programs Coordinator, we offer a variety of projects for those interested in genetics, financing, and patient care models. Read More

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