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News from Mission: Cure

Now Hiring: Summer 2021 Volunteer Communications Internship

By News

About Mission: Cure

Mission: Cure was founded in 2017 to find effective treatments and, ultimately, a cure for pancreatitis, an extremely painful, degenerative and costly disease. Led by Megan Golden, a leader in innovative, outcome-based financing such as “Social Impact Bonds,” and Linda Martin, a veteran technology entrepreneur, Mission: Cure is pioneering a new funding model that creates new incentives for patient outcomes. Innovation in curing disease is even more needed in the post-COVID-19 world.

Job Description

Position Summary

This internship is an exciting opportunity for anyone interested in applying communications skills and strategies to the world of public health, healthcare, and curing disease. As a young nonprofit organization, Mission: Cure offers a unique opportunity to gain insight on nonprofit development, growth, and operational functions. The intern(s) will work closely with the Communications and Programs Coordinator to develop, enhance, and put into practice communications and outreach strategies. Mission: Cure seeks hard workers and creative thinkers interested in healthcare policy, disease curing, communications, marketing, graphic design, and data analytics. While the intern(s) will be working alongside the Communications and Programs Coordinator, we offer a variety of projects for those interested in genetics, financing, and patient care models. Read More

Now Hiring: Summer 2021 Volunteer Internship

By News

About Mission: Cure

Mission: Cure was founded in 2017 to find effective treatments and, ultimately, a cure for pancreatitis– an extremely painful, degenerative and costly disease. Led by Megan Golden, a leader in innovative, outcome-based financing such as “Social Impact Bonds,” and Linda Martin, a veteran technology entrepreneur, Mission: Cure is pioneering a new funding model that creates new incentives for patient outcomes. Innovation in curing disease is even more needed in the post-COVID-19 world.

Job Description

Position Summary

Mission: Cure seeks student interns to help with this important initiative. We are looking for hard workers and creative thinkers interested in curing disease, nonprofit management, improving healthcare, and innovative financing of social ventures.

Each intern will be responsible for one significant product for the organization and will also contribute to overall operations and strategy. Mission: Cure interns will participate in a program where they will learn from leaders in health innovation and innovative finance.

Read More

Discovering and advancing the world’s first treatments for chronic pancreatitis with Healx

By News

We are elated to announce that Healx, an AI-powered technology company that shares our passion for patient-centered care, has chosen to team up with Mission: Cure to help find a cure for chronic pancreatitis! Mission: Cure was chosen from among many rare disease organizations to be part of Healx’s Rare Treatment Accelerator Program (RTA) with the aim of starting a clinical trial and eventually develop a treatment for pancreatitis.

Launched in October 2019, Healx’s Rare Treatment Accelerator program uses artificial intelligence, drug development, and clinical trial expertise to evaluate, enhance, and accelerate repurposed drugs to treat rare diseases. Healx will devote significant financial resources to the effort, with the aim of starting a clinical trial for a chronic pancreatitis therapy within 12 months. Mission: Cure will provide insights into patient needs and connections to pancreatitis experts.

This innovative partnership will bring chronic pancreatitis patients closer to a treatment for this terrible disease. We are excited to move the needle forward for pancreatitis patients with the help of Healx.

Recognising the all-too-common lack of financial investment and clinical expertise needed to translate repurposed drugs from research to reality, Healx will use its AI, drug development and clinical expertise, as well as significant financial resources, to evaluate, enhance and accelerate the repurposed drugs, with the aim of starting a clinical trial within 6-12 months.

Healx Press Release

Join Our Newsletter to Receive Updates on the Rare Treatment Accelerator

About Healx

Healx Team

Healx was founded in 2014 in Cambridge, UK, by Dr Tim Guilliams, a Biochemical Engineer and Tech Entrepreneur, and Dr David Brown, co-inventor of Viagra and former Global Head of Drug Discovery at Roche.

Healx is an AI-powered, patient-inspired technology company, accelerating the discovery and development of rare disease treatments at scale. There are 7,000 known rare diseases that affect 400 million people across the globe but only 5% of those conditions have approved treatments. Healx’s mission is to identify and progress novel therapies for the 95% of rare diseases without approved treatment. To do this, Healx combines AI technology with drug discovery expertise and patient insight to identify existing drugs that may be repurposed and combined to treat rare diseases.

About Mission: Cure

Mission: Cure is a nonprofit organization that aims to dramatically improve the health and well-being of people suffering from chronic and recurrent acute pancreatitis within 10 years, demonstrating a new model for curing disease. Mission: Cure partners with patients and their families, researchers, clinicians, pharmaceutical companies, and other stakeholders to discover life-altering therapies—including repurposed drugs—and bring them to patients. To support efficient therapy development and more effective care pathways, Mission: Cure works with health systems and payers to pilot innovative funding models that incentivize patient outcomes.

Volunteers Needed for Pancreatitis Research Study

By Clinical Trials, News

Volunteers Needed

Precision Care Network is collecting nasal cells to support research focused on improving medical care for people who have been diagnosed with pancreatitis or are at high risk for developing pancreatitis. Donating nasal cells takes less than five minutes.

Eligibility

  • Must be 18 years or older and
  • Have a pancreatitis diagnosis, or
  • Be at high risk of developing pancreatitis

Compensation

  • You will receive $25 per collection for each nostril (up to $50.00) for your participation
  • You may have the option to donate saliva

Qualification

To see if you may qualify, email research@precisioncn.org with the subject like, “Pancreatitis Research Qualification”, or call (919) 590-8108.

 

Download (PDF, 1.38MB)

Drug Development With a Patient Focus

By News
Patient-focused drug development

Picture from: National Pancreas Foundation

Pancreatitis Externally-Led Patient-Focused Drug Development Meeting

Mission: Cure was one of many patient advocacy nonprofit organizations that participated in the development of the very first Voice of the Patient Report, a months-long project led by the National Pancreas Foundation. In March, during the Patient-Focused Drug Development (PFDD) meeting, Co-Founder and pancreatitis patient Eric Golden shared his experience with pancreatitis before members of the United States Food and Drug Administration (FDA). PFDD meetings put patients’ experiences at the forefront and give them a voice in the drug development process.

Mission: Cure’s Belief in Patient-Centered Care

At Mission: Cure, we know firsthand the importance of a care model that puts patients at the forefront. We envision high quality care and support for pancreatitis patients that provides measurable improvement in patient outcomes and experience.

The PFDD meetings are a step in this direction– a commitment on our behalf to put patients’ voices first during every step of the disease process, including drug development. From NPF’s reporting: “Members of the FDA attended the meeting to listen to patients, caretakers, and other patient representatives discuss patients’ experiences with pancreatitis, the disease burden on daily life, available management approaches, and hopes for future treatments. ”

Patient-focused drug development is at the core of Mission: Cure’s innovative approach of getting to cures for pancreatitis and restructuring patient care to put patients first. Read more here about the steps Mission: Cure is taking to develop a patient-centered care model for pancreatitis.

Patient-Centered Care Models for Pancreatitis Patients

By Blog, News
Director of Patient Centered care

Avi Khullar, Director of Patient Centered Care

What are the experiences of individuals suffering from chronic pancreatitis and acute recurrent pancreatitis as they seek care and support?

  • How does this condition change the way that they go about their daily lives?

  • If pancreatic patients could reimagine their ideal care experience, what would that look like?

These were some of the questions that we sought to answer as we spoke with patients and caregivers of those suffering from chronic pancreatitis and recurrent acute pancreatitis.

Read More

Survey to Assess the Financial Implications of Pancreatitis

By News

Mission: Cure was established in 2017 to improve patient outcomes, find effective treatments and, ultimately, a cure for pancreatitis. Over the last three years, patients have consistently shared their dismal experience and the financial toll of navigating the medical system in search of a diagnosis and/or a treatment plan while suffering with pain, hopelessness, and poor outcomes.

We are conducting an anonymous online survey to better understand the financial challenges and barriers that patients face when seeking care for chronic and recurrent acute pancreatitis. We believe that your input will help us  to identify educational resources related to financial advocacy and financial literacy that patients may find helpful in navigating these experiences.

At the end of the online survey, you will see an invitation to schedule an optional one-on-one conversation to go deeper on some of the questions included in the survey. To schedule this conversation, you will be asked to provide your name and contact information so that a Mission: Cure team member can follow up with you. 

If you are willing to share your experiences with us, please complete this survey by Wednesday, September 23rd, 2020. If you have any questions, please do not hesitate to email us at mystory@mission-cure.org.

Moments of Hope Photo/Video Contest

By News

Mission: Cure Moments of Hope Photo/Video Contest

We’re very excited to release more details soon about our virtual Moments of Hope celebration for a cure. To make the evening even more special, we need your help! Pictures are worth a thousand words, and we want to be able to tell a story about pancreatitis and hope using your photos and home videos. We want to see your best photos and videos so we can show you off to all our supporters.

Contest Guidelines

Submit your photos and videos — however many you want! — that answer the following question(s):

  • Who has given you hope during your pancreatitis journey?
  • How has your life changed since you or a loved one were diagnosed with pancreatitis?
  • What changes would you like to see made in pancreatitis care within the next 5-10 years?
  • What is one thing that gives you hope, or one thing that helps you stay hopeful?

Please be as creative with your submissions as you’d like. All entries must be original work. The entries will be judged by Mission: Cure based on the following criteria: composition, quality, and theme fit. Submissions will be highlighted on our website, social media, and during our Moments of Hope celebration on Thursday, October 29th. By entering the contest, entrants agree that photos and videos submitted can be used by Mission: Cure for advertising purposes.

Submission Deadline: October 25th

Examples of Photos/Videos We Love

We’re excited to see your submissions! The winner of the photo contest will win a $100 grand prize! 

Additionally, patients are able to waive the cost of the Virtual Event ticket by submitting a photo or video. If you have any questions or concerns, please email us at info@mission-cure.org and we will be happy to help.

Now Hiring: Volunteer Development Intern

By News

About Mission: Cure

Mission: Cure was founded in 2017 to find effective treatments and, ultimately, a cure for pancreatitis, an extremely painful, degenerative and costly disease. Led by Megan Golden, a leader in innovative, outcome-based financing such as “Social Impact Bonds,” and Linda Martin, a veteran technology entrepreneur, Mission: Cure is pioneering a new funding model that creates new incentives for medical research & development focused on patient outcomes. Such innovation in curing disease is even more needed in the post-COVID-19 world.

 

Job Description

Mission: Cure is seeking committed, impact-driven internship candidates interested in gaining cross-cutting nonprofit development experience. As a young non-profit organization, Mission: Cure provides the unique opportunity for a motivated individual to gain insight into how small non-profits grow and raise capital for exciting and impactful projects. The intern(s) will work closely with the Program Coordinator and organization staff to create, support, and act upon the organization’s development efforts. This internship is an exciting, hands-on opportunity for those excited to pursue a career in nonprofit administration & development with an interest in public health, chronic diseases, genetics, drug development, innovative financing, and/or patient-centered care.

Key Responsibilities

  • Work with the organization staff to draft, edit, and proofread grant proposals
  • Assist Mission: Cure staff with managing corporate sponsors and the logistics of upcoming virtual fundraising campaigns
  • Compile data for grant reports and assist with the drafting and preparation of these reports
  • Identify promising grant opportunities using Instrumentl, a grant tracker platform, and additional desk research
  • Collaborate with Mission: Cure staff to develop presentations for potential and current donors
  • Provide additional development and administrative support as needed

Qualifications

  • Strong research and analytical skills
  • Strong oral and written communications skills
  • Strong project management skills, including the ability to work independently, problem-solve, and meet project deadlines
  • Experience with PowerPoint presentations and event planning (a plus if experience is with virtual event planning)
  • Experience or demonstrated interest in non-profit development, grant writing, grant reporting, individual fundraising, or fundraising campaigns
  • Familiarity with fundraising best practices a plus

Hours will range from 15-25 hours per week. Although Mission: Cure is based in New York City, this is a remote volunteer position that does not require relocation.

To apply, submit a copy of your resume and transcript to hiring@mission-cure.org.

Now Hiring: Intern, Research, Communications, and Projects

By News

About Mission: Cure

Mission:Cure is a young, ambitious nonprofit organization. It was founded in 2017 to find effective treatments and, ultimately, a cure for pancreatitis, an extremely painful, degenerative and costly disease. Mission:Cure is pioneering an innovative funding model that creates new incentives for patient outcomes and uses impact investing and public-private partnerships. 

In our first three years, we have made significant progress. Selected accomplishments include: defined a strategy to cure chronic pancreatitis within 10 years with input from key opinion leaders (KOLs); launched our patient education program and built a robust network of engaged patients, and organized and led a patient panel at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) meeting on expediting therapies for pancreatitis. Earlier this year, we were awarded the innovative practices award for Elsevier/Pistoia Alliance Datathon, an international data science competition that generated 300 drug repurposing candidates.

Purpose & Overview of Position

This position will support emerging research, communications initiatives, and strategic projects during a key growth period for the organization. The intern will be able to work on specific projects while also having a role helping to design a patient-centered care model for chronic pancreatitis that combines an understanding of the medical ecosystem and the patient experience. The intern will have frontline exposure to patients, providers, experts and various stakeholders. The intern will report to the Director of Patient-centered Care and Innovation.

Responsibilities

The intern will play a key role in helping to develop a patient-centered care model with a focus on developing a feasible business model, creating curriculum for providers, and supporting external communications. The intern will contribute and support activities including the following: 

  • Support knowledge and research initiatives, including desktop research of care models deployed in the field, patient-reported outcomes, and provider education curriculum ;
  • Support strategic projects on an ad-hoc basis, including engagements with philanthropic organizations, doctors, insurance companies and medical education providers, from business and financial modelling to program development and analysis; 
  • Develop, write, and/or edit engaging copy for targeted audiences, including grant proposals, blogs, articles, case studies and stories, internal research memos and analysis;
  • Support stakeholder relations activities including establishing and maintaining relationships with medical providers and patients, coordinating events, meetings, and updating  internal databases.

Qualifications

The ideal candidate demonstrates the following characteristics: 

  • Interest in healthcare, program development, social entrepreneurship and 
  • Resourcefulness and ability to learn quickly with a positive and constructive attitude 
  • Flexibility and adaptability to seize new opportunities and manage shifting priorities as we respond to shifts in the field
  • The ability to work in a startup environment and work independently while supporting several projects 
  • Strong collaborative abilities with internal colleagues and external colleagues and partners 
  • Excellent organizational, planning and time management skills 
  • The ability to manage details and organize processes without losing sight of the big picture 
  • A self-starter with personal accountability and a commitment to achieving and exceeding goals and objectives 
  • Excellent interpersonal and professional communications skills (verbal and written)

Term & Extension Opportunity

This is a four (4) month contract from September to December 2020. At the end of the Fall term there may be an opportunity to extend this internship position for another four (4) months, until April 2021.

Location & Working Conditions

Due to COVID-19, this is a remote-only position. Operating business hours are 9am to 5pm, Monday to Friday. There may be occasional virtual events that occur outside of normal operating hours.

Compensation

This internship role will be compensated for on an hourly basis, at $18.00 per hour for 40 hours per week.

To Apply

Please send your resume and cover letter to hiring@mission-cure.org. Mission: Cure is committed to creating a diverse and inclusive environment. We provide all qualified applicants with equal opportunity and consideration for employment without regard to race, ethnicity, religion, gender, gender identity or expression, sexual orientation, disability, age, or veteran status.

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