Many patients struggle with getting an accurate pancreatitis diagnosis. Patients recount being dismissed by doctors, spending thousands of dollars on tests, being told they are not really sick, and waiting years for a diagnosis. Our pancreatitis diagnosis toolkit provides an overview about chronic pancreatitis and lists common symptoms and typical tests. To learn more which tests to request from your…
Pain is the number one symptom of pancreatitis. Children living with pancreatitis often have to miss out on school, daily activities, and social bonding opportunities due to pancreatitis-induced pain episodes. Experts agree that pain management strategies can help pediatric patients and families live more high-quality lives. This toolkit provides expert recommendations on pain management for pediatric pancreatitis patients. This pain…
Making sure your child is getting all the nutrients they need while living with pancreatitis can be difficult. Poor nutritional management can lead to additional health concerns such as malnutrition and bone health issues. Mission: Cure has compiled recommendations developed by nutritional and gastrointestinal experts to assist in making sure your child's needs are met. Read our handout, "Nutritional Tips…
There are many benefits to getting genetic testing-- and it also comes with limitations. Genetic testing for pancreatitis might give you a fuller picture of your disease. Pancreatitis-specific genetic tests, like those provided by Ariel Precision Medicine, test for a number of gene mutations in your DNA, like CFTR, PRSS1, and SPINK1. These gene mutations are known to cause chronic…
Genetic testing involves taking a closer look at your DNA. Just like your genes determine physical characteristics, like the color of your eyes or the color of your skin, your DNA might also give you clues about what's going on beneath the surface. It might give you clues about your health-- whether or not you are genetically predisposed to certain…
