Our Progress
Since our founding in 2017, we have worked hard to advance effective treatments for pancreatitis, with the goal of developing a cure.
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companies are now working to develop therapies for pancreatitis after decades without progress
Developed
Best-Practices Care Protocol
for holistic pancreatitis care, vetted by top experts
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patients, caregivers, scientists, and advocates searching together for a cure
Developing Therapies
- Defined​ ​strategy to​ cure chronic pancreatitis​ within 10 years with input from key opinion leaders
- Identified​ 60 potential drug repurposing candidates​ ​that have evidence of action on pancreatitis targets
- Awarded ​Innovative Practices award for an international data science competition that generated 300 drug repurposing candidates
- Working with biotech Healx’s Rare Treatment Accelerator to develop a therapy for chronic pancreatitis
Improving Care
- Launched the patient-centered care strategy
- Documented and disseminated the lived experience of patients:Â Designing for Hope and Resilience
- Drafted specific care practices to improve patient outcomes and experience
- Established Patient-Caregiver Advisory Board
- Articulated pancreatitis-specific patient outcomes
Engaging Communities
- Reached over 77,000 patients, caregivers, clinicians, and scientists
- Increased content volume and published content in Spanish, Arabic, and Hebrew
- Held patient-focused drug development meeting with FDA & contributed to Voice of the Patient Report
- Organized & led ​patient panel​ ​at National Institutes of Health (NIH) meeting to expedite therapies for pancreatitis