The National Pancreas Foundation provides hope for those suffering from pancreatitis and pancreatic cancer through funding cutting edge research, advocating for new and better therapies, and providing support and education for patients, caregivers, and healthcare professionals. The National Pancreas Foundation is a supporter of and key partner in Mission: Cure’s first project, Mission: Cure Pancreatitis.
Rebecca’s Wish provides help and hope for children suffering from pancreatitis through supportive patient care, charitable services and medical research.
The Chan Zuckerberg Initiative was founded in 2015 to help solve some of society’s toughest challenges — from eradicating disease and improving education, to addressing the needs of our local communities. Its mission is to build a more inclusive, just, and healthy future for everyone.
The National Organization for Rare Disorders (NORD) is the leading independent patient advocacy organization representing all individuals and families affected by rare diseases in the United States. NORD improves lives, empowers patients and caregivers, and provides the right information and resources at the right time.
The Collaborative Alliance for Pancreatic Education and Research’s (CAPER) mission is: (a) to facilitate the collaboration of researchers of pancreatic diseases and to support scientifically rigorous multi-center studies in pancreatic diseases; (b) to educate and train healthcare providers in pancreatic diseases; (c) and to increase public health awareness regarding pancreatic diseases.
The purpose of Global Genes is to connect, empower and inspire the rare disease community.
Patient Worthy is an online media platform that publishes 8-10 rare disease news articles and stories every day- catering specifically to the rare disease community. They connect rare disease patients and caregivers with support, educational resources, up-to-date news, and one another. They feature upcoming patient events, stories and interviews, and updates regarding clinical trials, FDA approvals, etc. Their goal is to amplify patient voices and feature the advocacy groups and research initiatives that serve them.
As a member of this strategic advisory council, Mission: Cure will be working on urgent policy issues by collaborating with both industry and patient organizations to create and advance science-based policy for the rare disease community.
Black Women’s Health Imperative launched the Rare Disease Diversity Coalition to address the extraordinary challenges faced by rare disease patients of color. The Coalition brings together rare disease experts, health and diversity advocates, and industry leaders to identify and advocate for evidence-based solutions to alleviate the disproportionate burden of rare diseases on communities of color.