Pancreatitis Patient Stories
Your Story Matters
At the heart of our work are the stories of those who have experienced pancreatitis firsthand, along with their families impacted by the disease. We are inspired by the resilience and courage of those who have faced the challenges of pancreatitis, and we believe that by sharing their stories, we can raise awareness, foster compassion, and drive progress in finding a cure.

Five Hospitalizations, a Pseudocyst, and Finally Some Answers: My Pancreatitis Story
Amanda knew something was different. After 13 years of living with Ulcerative Colitis, she knew these pains were not the same. What followed was months of misdiagnosis, five more hospitalizations, and a long road to finally being diagnosed with chronic pancreatitis and EPI. This is her story.

Pancreatitis at 19: “Even When I Looked Fine, I Was Struggling Inside”
Diagnosed just before her 20th birthday, this patient opens up about years of hospitalization, feeling unseen, and what she’d tell someone newly diagnosed with pancreatitis.

Amanda’s Pancreatitis Journey: From Diagnosis to TPIAT
My very first attack was when I was 10 years old. I’ll never forget the impact it had on my outlook on the world as

When a Diagnosis Changes Everything: Atlas’s Journey
Crystal Kaya, a mother from Seattle, shares her journey with her son Atlas, who suffers from chronic pancreatitis. Diagnosed at just five years old, Atlas

Julie’s Pancreatitis Journey: From Diagnosis to Life Without a Pancreas
When I was 25, I was diagnosed with my first bout of acute pancreatitis which started a long journey with multiple ups and downs. I

Megan’s Pancreatitis Story: Battling Pain with Resilience
How Has Pancreatitis Impacted You? It has taken me a while to get the courage to share my story. Today is a particularly bad day,

Pragya’s Autoimmune Pancreatitis Story: The Power of Support & Hope
My journey with pancreatitis began with intense abdominal pain, relentless vomiting, and fever. Initially misdiagnosed as gastritis, I endured six months of endoscopies while my

Bhuvan’s Pancreatitis Story: Managing Symptoms with Lifestyle Changes
My first pancreatitis attack began with constant stomach pain radiating to my back for weeks. My dad thought I was having normal gut issues and

Jessica’s Pancreatitis Story: A Mother’s Journey Through Pain and Perseverance
When I was pregnant with my second child, Levi, I had gallstones. I was always told it was gas by my OBGYN. I had immense