https://www.youtube.com/watch?v=xo-5qldfkC8 On Mission: Cure’s March 3, 2020 webinar, Nurse Practitioner Michelle Klosterman of UCSF Benioff Children’s Hospital discussed best nutrition practices for children suffering from pancreatitis. Dr. Virginia Stallings of Children’s Hospital of Philadelphia explained how pancreatitis affects food absorption and growth in children and adolescents. You can now view this webinar online to learn …
https://www.youtube.com/watch?v=hZGd5QhjrKc&t=2s On this webinar, Kate Nicholson, J.D., a civil rights attorney, pain patient advocate, and expert on the so-called opioid or overdose crisis, and Dr. Eva Szigethy, a leading UPMC psychiatrist focused on the management of chronic pain and psychotropic medication management in patients, discuss: Barriers to care for patients who use opioids The opioids …
Pancreatitis Pain: The Latest Treatment & Policy Perspectives on Opioids Read More »
I see you. I see the struggle of chronic illness, I see the deeply intertwined web of psychological stress and reactions of the body, and I see the impact of the “care” provided by the medical system. As a fellow in pediatric gastroenterology, I have spent the last few years at the bedsides of my …
The definition of chronic pain will feel familiar to any chronic pancreatitis patient: ongoing or recurrent pain, lasting beyond the usual course of acute illness or injury or more than 3 to 6 months, and adversely affecting the individual’s well-being. In fact, this type of pain—persistent, intense, debilitating—is a defining feature of chronic pancreatitis. Mission: …
As many of you may know, Mission: Cure recently launched its first patient survey to gain real-world patient perspectives on living with the disease. Although the survey is ongoing, we are also excited to share some preliminary insights that we have gathered from the first 145 responses. We are excited to present a white paper …
https://www.youtube.com/watch?v=MyMvs1qacYU Mission: Cure’s webinar, TPIAT: Should I Have My Pancreas Removed?, discusses pancreas surgery to reduce chronic pain from pancreatitis. This is the fourth broadcast in Mission: Cure’s Patient and Family Webinar Series. In this webinar replay you can hear Dr. Melena Bellin of the University of Minnesota explain: Who should consider TPIAT (Total Pancreatectomy & Islet …
Doctors Explain TPIAT: Will pancreas removal surgery cure my pancreatitis? Read More »
Pediatric Pancreatitis: Causes, Treatments, Outcomes & Research Dr. Aliye Uc, MD, Professor of Pediatric Gastroenterology, Professor of Radiation Oncology, University of Iowa and leader of the INSPPIRE Pediatric Pancreatitis Research Project shares what has been learned so far, and answers questions from patients and family members. Composed of 22 sites throughout the world, the INSPPIRE …
Pediatric Pancreatitis: The State of Research and Treatment Read More »
Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presented on Mission: Cure’s Pancreatitis Patient Webinar on Exocrine Pancreatic Insufficiency (EPI) and Pancreatic Enzyme Replacement Therapy (PERT). EPI is one of the symptoms of pancreatitis. Enzymes and PERT are a confusing but critically important part of chronic pancreatitis treatment. If …
New Information for Pancreatitis Patients on Treating EPI Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presents Busting the Myths about Pancreatic Enzymes for Pancreatitis. In this webinar, the fifth in Mission: Cure’s Patient and Family Webinar Series, Dr. Freedman explains: What causes exocrine pancreatic insufficiency (EPI)? How is EPI diagnosed …
On February 28, 2019, Rare Disease Day, an alliance of leading life-science companies, in partnership with Mission: Cure, announced the promising results of a 4-month “datathon” aimed at identifying potential treatments for chronic pancreatitis. Using artificial intelligence and statistical techniques, datathon participants identified 4 existing, approved drugs as repurposing candidates worth testing as possible cures …
Potential Chronic Pancreatitis Treatments Identified Read More »
Before You Go
Stay up-to-date on the latest Mission: Cure news and developments in pancreatitis care.