Pancreatitis Externally-Led Patient-Focused Drug Development Meeting Mission: Cure was one of many patient advocacy nonprofit organizations that participated in the development of the very first Voice of the Patient Report, a months-long project led by the National Pancreas Foundation. In March, during the Patient-Focused Drug Development (PFDD) meeting, Co-Founder and pancreatitis patient Eric Golden shared …
What are the experiences of individuals suffering from chronic pancreatitis and acute recurrent pancreatitis as they seek care and support? How does this condition change the way that they go about their daily lives? If pancreatic patients could reimagine their ideal care experience, what would that look like? These were some of the questions that …
Patient-Centered Care Models for Pancreatitis Patients Read More »
Stabbing Pain Leads to Acute Pancreatitis Diagnosis In December 2018, Laura Perry, a 24-year old previously-healthy law student, began experiencing abdominal pain after returning home from a trip to Mexico with her family. While in Mexico, Laura had contracted an infection. Believing that it was nothing serious, her doctor prescribed antibiotics. The antibiotics were unsuccessful …
Laura’s Pancreatitis Story: Seeking Treatment for Chronic Pancreatitis Read More »
Pancreatitis and Alcohol When pancreatitis patients go to the doctor or the emergency room, they face a barrage of questions and numerous tests in hopes of finding the cause of their intense pain. If you are a pancreatitis patient, you have probably been asked if you drink alcohol. You may have been told that drinking …
ICD Codes Linking Pancreatitis to Alcohol Harm Patients. Let’s Change Them. Read More »
La pancreatitis crónica (PC) es una enfermedad poco conocida, para gran frustración de pacientes, médicos e investigadores. Hay buenas noticias: un equipo internacional de expertos ha desarrollado pautas de consenso sobre el dolor de pancreatitis crónica. La tarea ahora es hacer que los médicos y pacientes estén al tanto de ellos. El desafÃo de manejar …
Nuevas guÃas para el manejo del dolor de la pancreatitis crónica Read More »
Tuvimos varias preguntas sobre nuestro seminario web sobre la genética de pancreatitis, que se puede ver aquÃ, que no pudimos contestar durante la sesión. No querÃamos dejar preguntas sin respuesta asà que aquà están las respuestas del Dr. Mark Haupt y el Dr. David Whitcomb a las preguntas que no contestamos: ¿Por que es que …
“La pancreatitis: ¿está en tus genes?” Preguntas y Respuestas del Seminario Web Read More »
Puntos clave: •  El dolor crónico de pancreatitis tiene un costo importante en los pacientes y sus seres queridos. •  Para efectivamente tratar la pancreatitis crónica, necesitamos hablar sobre los sÃntomas y el impacto del dolor en las vidas de los pacientes. •  Una pieza de la solución es autogestión personal, que incluye la educación, …
El Dr. Stever Freedman, MD, Ph.D, un experto mundial de la enfermedad pancreática y fibrosis quÃstica, presentó en el Webinar de pacientes con Pancreatitis de Mission: Cure sobre la insuficiencia pancreática exocrina (IPE) y la Terapia de Reemplazo de Enzimas Pancreáticas (TREP). IPE es un sÃntoma de pancreatitis. Las enzimas pancreáticas son confusas, pero son …
IPE Y Enzimas Pancreáticas: Experto médico contesta las preguntas de pacientes Read More »
This summer, Mission: Cure is excited to welcome nine incredible interns to our team. As our largest summer intern cohort ever, they have been busy in these past few weeks learning about chronic pancreatitis and Mission: Cure’s model and speaking with other individuals in Mission: Cure’s network. Despite not being able to be physically together, …
Introducing Mission: Cure’s Summer 2020 Intern Cohort Read More »
We at Mission: Cure are shocked and outraged by the circumstances surrounding the deaths of George Floyd, Breonna Taylor, Tony McDade, Sandra Bland, Ahmaud Arbery and countless other victims of anti-Black violence. We stand in solidarity with the Black community, the Black Lives Matter movement, and efforts to end systemic racism. We commit to addressing …
Mission: Cure’s Statement on Racial Equality and Justice Read More »
Before You Go
Stay up-to-date on the latest Mission: Cure news and developments in pancreatitis care.