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July 8, 2021

Diagnosing Hereditary Pancreatitis: Rhiannon’s Story

Rhiannon Bending, 31, shares her story with hereditary pancreatitis Although Rhiannon's father had chronic pancreatitis, doctors were unaware that hereditary pancreatitis can be passed down through genetics and kept reassuring that her that she will not suffer from the disease. Genetic testing gave her the answers she so badly needed-- she has hereditary chronic pancreatitis. Rhiannon shares the effect this…
Sofia Garcia
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chronic pain and pediatric pancreatitis
Patient StoriesPediatric Pancreatitis
April 29, 2021

Chronic Pediatric Pancreatitis and Chronic Pain: Ashlynn’s Story

Ashlynn Nieve, 18, shares her story with pediatric pancreatitis Chronic pediatric pancreatitis patient Ashlynn Nieve (18) talks about how long she had to wait for her diagnosis, how her chronic pain often kept her from attending school and how she coped with prejudice and discrimination without losing hope. Ashylnn has been suffering from chronic pediatric pancreatitis for the last eight…
Sofia Garcia
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creon
BlogExocrine Pancreatic InsufficiencyPatient ResourcesPatient Stories
February 18, 2021

Pancreatic Enzymes and Pancreatitis: My Experience

Road towards a pancreatitis diagnosis #Creoninthewild Hawaii My journey with pancreatitis started when I was about 10 years old. Throughout my years in school (elementary, middle and high school), I was misdiagnosed with a “sensitive stomach.” My pain was not taken seriously by doctors. I was sent to several counselors while I was in college because, despite my symptoms, doctors…
Sofia Garcia
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BlogExocrine Pancreatic InsufficiencyPatient ResourcesPatient Stories
March 11, 2021

My Experience with Pancreatic Enzymes (PERT)

I read Liz’s blog and her journey with exocrine pancreatic insufficiency (EPI) resonated with my own experience. The one difference - since the diagnosis, seven years and counting - I continue to calibrate my enzyme dosage. Here is my experience with pancreatic enzymes. My first (diagnosed) acute pancreatitis attack happened in 1998 and I was diagnosed with chronic pancreatitis in…
Sofia Garcia
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laura perry
BlogPatient Stories
October 2, 2020

Seeking Treatment for Chronic Pancreatitis: Laura’s Story

Laura while traveling in Wadi Rum, Jordan Stabbing Pain Leads to Acute Pancreatitis Diagnosis In December 2018, Laura Perry, a 24-year old previously-healthy law student, began experiencing abdominal pain after returning home from a trip to Mexico with her family. While in Mexico, Laura had contracted an infection. Believing that it was nothing serious, her doctor prescribed antibiotics. The antibiotics…
Sofia Garcia
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Hereditary pancreatitis patient, Christine Cataldo, with her family.
Patient ResourcesPatient Stories
September 5, 2018

Living with Pancreatitis: The Importance of Hope

Interview with Chronic Pancreatitis Patient, Christine Cataldo  In the summer of 2018, Mission: Cure’s intern, Gabriela Gil, sat down with Christine Cataldo, a patient volunteer with Mission: Cure, to learn more about Christine’s experiences living with chronic pancreatitis. Diagnosed with pancreatitis linked to the PRSS1 genetic mutation in 2002, Christine shared stories how her condition was identified, discussed her family’s…
Gabriela Gil
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Shows Mission: Cure's team at PancreasFest 2019.
Clinical TrialsGeneticsNewsPatient StoriesRepurposing Drugs
September 5, 2019

Mission: Cure Update: PancreasFest and Progress

PancreasFest 2019 unveiled promising scientific discoveries and exciting collaboration opportunities, and Mission: Cure was there! Mission: Cure's Team at PancreasFest 2019. Big thanks to our amazing interns from Brown University and Amy Jensen who shared her story of living undiagnosed with chronic pancreatitis. Yes, PancreasFest is the name of a scientific conference held annually in Pittsburgh, PA in July where…
Megan Golden
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