Category

Patient Resources

Megan Golden
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Patient ResourcesWebinarsWebinars: TPIAT
April 30, 2019

Will Pancreas Surgery Cure My Pancreatitis? Doctors Explain TPIAT

Mission: Cure's webinar, TPIAT: Should I Have My Pancreas Removed?, discusses pancreas surgery to reduce chronic pain from pancreatitis.  This is the fourth broadcast in Mission: Cure’s Patient and Family Webinar Series. In this webinar replay you can hear Dr. Melena Bellin of the University of Minnesota explain: Who should consider TPIAT (Total Pancreatectomy & Islet Auto-Transplantation) The selection criteria The TPIAT…
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Megan Golden
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Patient ResourcesWebinars
April 25, 2019

Webinar on Pediatric Pancreatitis

Does your child have pancreatitis? Mission: Cure and the National Pancreas Foundation invite you to view the first webinar in our new Pancreatitis Webinar Series Pediatric Pancreatitis: The latest on causes, treatments, outcomes & research. Q & A too! Dr. Aliye Uc, MD, Professor of Pediatric Gastroenterology, Professor of Radiation Oncology, University of Iowa and leader of the INSPPIRE Pediatric…
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Linda Martin
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BlogExocrine Pancreatic InsufficiencyPatient Resources
March 25, 2019

EPI and Pancreatic Enzymes: Expert Doctor Answers Patient Questions

Dr. Steven Freedman of Beth Israel Deaconess Medical Center and Harvard Medical School Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presented on Mission: Cure’s Pancreatitis Patient Webinar on Exocrine Pancreatic Insufficiency (EPI) and Pancreatic Enzyme Replacement Therapy (PERT). EPI is one of the symptoms of pancreatitis. Pancreatic enzymes are a confusing but critically…
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Megan Golden
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Exocrine Pancreatic InsufficiencyNewsPatient ResourcesTopicsWebinarsWebinars: Exocrine Pancreatic Insufficiency (EPI) & Pancreatic Enzymes
March 8, 2019

Pancreatic Enzyme Replacement Therapy – New Information for Pancreatitis Patients on Treating EPI

Busting the Myths about Pancreatic Enzymes for Pancreatitis and EPI Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presents Busting the Myths about Pancreatic Enzymes for Pancreatitis. In this webinar, the fifth in Mission: Cure’s Patient and Family Webinar Series, Dr. Freedman explains: What causes exocrine pancreatic insufficiency (EPI)? How is EPI diagnosed and treated? When…
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Dr. Mark Haupt
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BlogGeneticsPatient ResourcesTopics
January 11, 2019

Genetic Testing for Pancreatitis: What We Know Now

Dr. Mark Haupt, MD is the Chief Medical Officer of Ariel Precision Medicine, a company that provides digital health and genomics solutions for complex disorders, like pancreatitis. Dr. Haupt is a Pediatric Pulmonologist who has dedicated his career to helping patients with pancreatic disease through his work in academia, the pharmaceutical industry, and his current work with Ariel. As a…
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Megan Golden
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BlogGeneticsNewsPatient Resources
December 13, 2018

“Is Pancreatitis in Your Genes?” Webinar Q&A

We had so many questions during our webinar on the genetics of pancreatitis, which can be viewed here, that we could not answer them all during the session. We didn't want to leave questions unanswered, so here are Dr. Mark Haupt and Dr. David Whitcomb's answers to the questions we didn’t get to: (more…)
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Megan Golden
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GeneticsNewsPatient ResourcesRepurposing DrugsWebinars
December 9, 2018

Curing Pancreatitis: It’s Time for a New Approach!

https://youtu.be/BOmLjiVIX6c On December 8th, Mission: Cure hosted an informational webinar for chronic and recurrent acute pancreatitis patients, their families and clinicians on their new approach to curing pancreatitis. It featured co-directors Megan Golden and Linda Martin, who gave presentations on the gap Mission: Cure is working to address, their innovative financing model, and how patients and families can get involved…
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Megan Golden
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Patient Resources
November 15, 2018

“Is Pancreatitis in Your Genes?” Webinar Presentation Slides

On November 13th, Mission: Cure hosted an informational webinar for chronic and recurrent acute pancreatitis patients, their families and clinicians on new genetic discoveries related to this disease. Below are the slides for the presentations by Dr. David Whitcomb of the University of Pittsburgh Medical Center and Dr. Mark Haupt of Ariel Precision Medicine, two award-winning and innovative leaders, and a…
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Megan Golden
2
GeneticsPatient ResourcesWebinarsWebinars: Genetics
November 14, 2018

Pancreatitis and Genetics: New Science Shows Pancreatitis Likely to be Hereditary

https://www.youtube.com/watch?v=dLrEmdmgaLQ&t=5s Pancreatitis is Often Caused by Genetics In November 2018, Mission: Cure hosted a webinar for chronic and recurrent acute pancreatitis patients on new genetic discoveries related to pancreatitis. It featured presentations by Dr. David Whitcomb of the University of Pittsburgh Medical Center and Dr. Mark Haupt of Ariel Precision Medicine, experts in pancreatitis genetics. The doctors answered many questions…
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Megan Golden
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Patient ResourcesPatient Stories
October 15, 2018

Kayla-Ann Keagy: Courage Award Recipient Tells Her Story

At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals living with chronic pancreatitis. While the event as a whole was a verifiable success, raising over $150,000 to support the search for a cure, it was the stories of Matthew Musto (aka blackbear), Kayla-Ann Keagy,…
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