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GeneticsPatient ResourcesPatient Stories
July 8, 2021

Diagnosing Hereditary Pancreatitis: Rhiannon’s Story

Rhiannon Bending, 31, shares her story with hereditary pancreatitis Although Rhiannon's father had chronic pancreatitis, doctors were unaware that hereditary pancreatitis can be passed down through genetics and kept reassuring that her that she will not suffer from the disease. Genetic testing gave her the answers she so badly needed-- she has hereditary chronic pancreatitis. Rhiannon shares the effect this…
GeneticsNewsPatient ResourcesWebinarsWebinars: Genetics
June 29, 2021

Watch our Webinar on Genetics and Medication

Genetics and Medication: How Your Genes Affect the Medications You Take https://youtu.be/yA0nteCFZFY On June 23rd, 2021, Mission: Cure held a webinar with Ariel Precision Medicine to shed light on the connection between genetics and medication. Solomon Adams, Director of Bioinformatics and Genome Technologies discussed how your genes affect how certain medications (like antidepressants and pain medication) work and how you…
BlogPain ManagementPatient ResourcesPediatric PancreatitisTopics
November 21, 2019

Managing Chronic Pain in Pancreatitis

Key points: •   Chronic pain from pancreatitis takes a major toll on patients and their loved ones. •   To effectively treat chronic pancreatitis pain, we need to address the symptoms as well as the impact of pain on patients’ lives.  •   One piece of the solution is self-management, which involves education, lifestyle changes, pain coping skills, and emotional and social…
NewsPain ManagementPatient ResourcesWebinarsWebinars: Pain Management
October 28, 2019

Pancreatitis Pain: A Medical Approach with a Patient Focus

Pancreatitis Pain: A Medical Approach with a Patient Focus If you or a loved one suffer from chronic pain from pancreatitis, you won't want to miss the second in Mission: Cure’s series on managing chronic pancreatitis pain. The first webinar in this series discussed a psychological approach called pain self-management. In this webinar, Dr. Steven Freedman discussed a range of…
GeneticsPatient ResourcesWebinarsWebinars: Genetics
November 14, 2018

Pancreatitis and Genetics: New Science Shows Pancreatitis Likely to be Hereditary

https://www.youtube.com/watch?v=dLrEmdmgaLQ&t=5s Pancreatitis is Often Caused by Genetics In November 2018, Mission: Cure hosted a webinar for chronic and recurrent acute pancreatitis patients on new genetic discoveries related to pancreatitis. It featured presentations by Dr. David Whitcomb of the University of Pittsburgh Medical Center and Dr. Mark Haupt of Ariel Precision Medicine, experts in pancreatitis genetics. The doctors answered many questions…
Patient ResourcesPediatric PancreatitisWebinarsWebinars: Pediatric Pancreatitis
April 25, 2019

Webinar on Pediatric Pancreatitis

Pediatric Pancreatitis: Causes, Treatments, Outcomes & Research Dr. Aliye Uc, MD, Professor of Pediatric Gastroenterology, Professor of Radiation Oncology, University of Iowa and leader of the INSPPIRE Pediatric Pancreatitis Research Project shares what has been learned so far, and answers questions from patients and family members. Composed of 22 sites throughout the world, the INSPPIRE group was formed to research…
Depicting a child suffering from chronic pain on a couch.
NewsPain ManagementPatient ResourcesPediatric PancreatitisWebinarsWebinars: Pain ManagementWebinars: Pediatric Pancreatitis
September 6, 2019

Pancreatitis and Chronic Pain: How Can I Manage?

On this Mission: Cure webinar, Dr. Tonya Palermo discusses pain self-management techniques If you or a family member have chronic pain from pancreatitis, Mission: Cure’s webinar with Dr. Tonya Palermo will be helpful as it explores the impact of chronic pain on children, adults and families dealing with pancreatitis. “Chronic Pain and Pancreatitis” was selected as the topic for this…
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BlogExocrine Pancreatic InsufficiencyPatient ResourcesPatient Stories
February 18, 2021

Pancreatic Enzymes and Pancreatitis: My Experience

Road towards a pancreatitis diagnosis #Creoninthewild Hawaii My journey with pancreatitis started when I was about 10 years old. Throughout my years in school (elementary, middle and high school), I was misdiagnosed with a “sensitive stomach.” My pain was not taken seriously by doctors. I was sent to several counselors while I was in college because, despite my symptoms, doctors…
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