Home » Patient-Centered Care » Patient Stories
Filter
GeneticsPatient ResourcesPatient Stories
Patient Story: Diagnosing Hereditary Pancreatitis: Rhiannon’s Story
July 8, 2021Rhiannon Bending, 31, shares her story with hereditary pancreatitis Although Rhiannon's father had chronic pancreatitis, doctors were unaware that hereditary pancreatitis can be passed down through genetics and kept reassuring that her that she will not suffer from the disease. Genetic testing gave her the answers she so badly needed-- she has hereditary chronic pancreatitis. Rhiannon shares the effect this…
Patient StoriesPediatric Pancreatitis
Patient Story: Chronic Pediatric Pancreatitis and Chronic Pain: Ashlynn’s Story
April 29, 2021Ashlynn Nieve, 18, shares her story with pediatric pancreatitis Chronic pediatric pancreatitis patient Ashlynn Nieve (18) talks about how long she had to wait for her diagnosis, how her chronic pain often kept her from attending school and how she coped with prejudice and discrimination without losing hope. Ashylnn has been suffering from chronic pediatric pancreatitis for the last eight…
Patient Stories
Avoiding Pancreatitis Complications: Seeking Proactive Care
April 22, 2021My First Pancreatitis Complications My first (diagnosed) pancreatitis complications occurred in 1998 after I had eaten lunch. It was a shooting pain that rendered me immobile. I was in excruciating pain and later learned I had been in a coma for a few hours. Doctors told me that I had suffered an episode of acute pancreatitis after tests confirmed elevated…
Exocrine Pancreatic InsufficiencyPatient ResourcesPatient Stories
Blog: My Experience with Pancreatic Enzymes (PERT)
March 11, 2021I read Liz’s blog and her journey with exocrine pancreatic insufficiency (EPI) resonated with my own experience. The one difference - since the diagnosis, seven years and counting - I continue to calibrate my enzyme dosage. Here is my experience with pancreatic enzymes. My first (diagnosed) acute pancreatitis attack happened in 1998 and I was diagnosed with chronic pancreatitis in…
Exocrine Pancreatic InsufficiencyPatient ResourcesPatient Stories
Blog: Pancreatic Enzymes and Pancreatitis: My Experience
February 18, 2021Road towards a pancreatitis diagnosis #Creoninthewild Hawaii My journey with pancreatitis started when I was about 10 years old. Throughout my years in school (elementary, middle and high school), I was misdiagnosed with a “sensitive stomach.” My pain was not taken seriously by doctors. I was sent to several counselors while I was in college because, despite my symptoms, doctors…
Patient Stories
Seeking Treatment for Chronic Pancreatitis: Laura’s Story
October 2, 2020Laura while traveling in Wadi Rum, Jordan Stabbing Pain Leads to Acute Pancreatitis Diagnosis In December 2018, Laura Perry, a 24-year old previously-healthy law student, began experiencing abdominal pain after returning home from a trip to Mexico with her family. While in Mexico, Laura had contracted an infection. Believing that it was nothing serious, her doctor prescribed antibiotics. The antibiotics…