Experiencia actual del paciente

¿Cuál es el viaje típico de una persona que vive con pancreatitis mientras navega por el sistema médico en busca de un diagnóstico y un plan de atención? En el transcurso de más de 35 entrevistas, pudimos trazar el siguiente viaje.

Experiencia actual del paciente

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An individual experiences intense excruciating abdominal pain.
An individual experiences intense excruciating abdominal pain.
They go to the ER; get some pain relief; may undergo some diagnostic tests; likely discharged with no clear diagnosis and/or referral to a GI.
They go to the ER; get some pain relief; may undergo some diagnostic tests; likely discharged with no clear diagnosis and/or referral to a GI.
They may make multiple visits to the gastroenterologist and or other clinicians and undergo another set of scans and tests.
They may make multiple visits to the gastroenterologist and or other clinicians and undergo another set of scans and tests.
The person may end up making multiple visits to different GIs, urgent care and emergency departments, many times with no clear diagnosis or even a misdiagnosis.
The person may end up making multiple visits to different GIs, urgent care and emergency departments, many times with no clear diagnosis or even a misdiagnosis.
The person is left in a state of confusion, hopelessness and anxiety while still managing pain.
The person is left in a state of confusion, hopelessness and anxiety while still managing pain.
Some individuals who have the resources may traverse the country, seeking experts to diagnose their condition and/or create a plan to manage pancreatitis.
Some individuals who have the resources may traverse the country, seeking experts to diagnose their condition and/or create a plan to manage pancreatitis.
Armed with a diagnosis, the person may seek care from a trusted GI and pancreas expert.
Armed with a diagnosis, the person may seek care from a trusted GI and pancreas expert.
They may also seek help from other specialists to manage related complications. But in most cases, the burden remains with the patient (and/or the caregiver) to coordinate between different clinicians while carrying the burden of pancreatitis.
They may also seek help from other specialists to manage related complications. But in most cases, the burden remains with the patient (and/or the caregiver) to coordinate between different clinicians while carrying the burden of pancreatitis.
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Citas de pacientes con pancreatitis

Los pacientes con pancreatitis se enfrentan a numerosos obstáculos para acceder a la atención. Las siguientes citas son de pacientes con pancreatitis, que dan vida a sus experiencias.

Se siente solo como paciente. Quiero desarrollar un plan. Si tienes un plan, tienes esperanza.

Peter Fraser, paciente con pancreatitis

Mi médico me dijo que estaba exagerando el dolor porque soy mujer.

Sarah Walker, paciente con pancreatitis

Solo quiero que tenga la buena calidad de vida que se merece, especialmente después de todo lo que ha sufrido.

Emilia Hubert, paciente con pancreatitis

Estoy cansado de llevar mis registros médicos solo para demostrar que no soy un alcohólico sino un drogadicto, especialmente con niños a cuestas.

Sarah Walker, paciente con pancreatitis

Te puedes ahogar si no tienes apoyo o médicos que escuchen tus emociones.

Annabelle Ruiz, paciente con pancreatitis

Si pudiera soportar su dolor, lo haría en un santiamén... pero lo que puedo hacer es defenderlo.

Emilia Hubert, paciente con pancreatitis
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