Pancreatitis Resources and Support
Pancreatitis Resources for Patients and Families
Here, pancreatitis patients and caregivers can find helpful resources when it comes to living with and managing pancreatitis.Â
Pancreatitis Webinars
Pancreatitis Videos
Pancreatitis Toolkits
Patient Stories
Julie’s Pancreatitis Journey: From Diagnosis to Life Without a Pancreas
When I was 25, I was diagnosed with my first bout of acute pancreatitis which started a long journey with multiple ups and downs. I
Megan’s Pancreatitis Story: Battling Pain with Resilience
How Has Pancreatitis Impacted You? It has taken me a while to get the courage to share my story. Today is a particularly bad day,
Blog
Visit our blog to read about nutrition, pain management, and more!
Pancreatitis Support Groups
HealthUnlocked: Chronic Pancreatitis Support
The Chronic Pancreatitis Support community on the HealthUnlocked platform provides a valuable resource for anyone affected by chronic pancreatitis and related conditions, such as exocrine pancreatic insufficiency (EPI) and recurrent acute pancreatitis.
Mission: Community to End Pancreatitis
The Mission: Community to End Pancreatitis Facebook Group, offered by Mission: Cure, provides a unique opportunity for individuals impacted by pancreatitis to stay up-to-date on the latest developments in research and treatment of chronic and recurrent acute pancreatitis.
PRSS1 Mutation – Hereditary Pancreatitis Patients Want a Cure
The PRSS1 Mutation – Hereditary Pancreatitis Patients Want a Cure Facebook group is an essential resource for patients and caregivers affected by this rare genetic mutation. This hereditary pancreatitis support group has been organized by us at Mission: Cure with the goal of advancing treatments for PRSS1 patients.
Childhood Pancreatitis – Support
The Childhood Pancreatitis – Support Facebook group, offered by the Foundation for Childhood Pancreatitis, provides a safe and welcoming space for families to come together and share their experiences.
In this group, families can connect with others who understand the unique challenges of childhood pancreatitis.
Patient Advocacy Resources
Alcohol Factsheet
Contrary to common understanding, chronic pancreatitis is not an alcoholic’s disease nor is alcohol the primary cause of chronic pancreatitis. Misinformation about alcohol and chronic pancreatitis impedes physicians’ ability to treat patients effectively and stigmatizes patients.
Pediatric Pancreatitis Resources
Pediatric Patient Passport
This passport includes recommendations based on pediatric-specific evidence and pediatric pancreatologists’ expert opinion, as well as personalized background information and treatment suggestions for each patient.
Camp Hope
Established in 2021 through a collaboration between Rebecca’s Wish and the National Pancreas Foundation, Camp Hope offers a unique overnight summer camp experience for children dealing with pediatric pancreatitis or those who have undergone TPIAT surgery.
Financial Assistance Programs
PERT Savings Programs
CREON On Course
With the CREON On Course savings card, patients may pay as little as $5 for your 30- or 90-day prescription of CREON.*
Pancreaze Engage Program
With a Pancreaze Engage savings card, patients may save up to $100 per prescription fill (30-day supply) or $300 per prescription fill (90-day supply).*
Medical Bill Relief Programs​​
PAF Co-Pay Relief
The Patient Advocate Foundation is a national nonprofit organization that helps individuals with chronic, life-threatening, or debilitating illnesses overcome healthcare obstacles and access quality care. PAF provides case management, financial assistance, insurance counseling, and co-pay relief to patients and families.
Accessia Health
Accessia Health is a nonprofit organization that provides financial assistance for prescriptions, medical treatments and expenses, travel, and insurance premiums for those living with chronic medical conditions. Its program services include healthcare education, specialized legal services, and case management.
HealthWell Foundation
The HealthWell Foundation is a leading independent non-profit dedicated to improving access to health care for America’s underinsured. When health insurance is not enough, the HealthWell Foundation fills the gap by assisting with copays, premiums, deductibles, and out-of-pocket expenses.
Transportation Programs
Mercy Medical Angels
Mercy Medical Angels provides free transportation to medical care for patients diagnosed with life-threatening diseases or serious health issues. On the ground with gas cards, bus and train tickets and in the air with trips flown by volunteer pilots and the commercial airlines Mercy Medical Angels ensures that no one in need is denied medical care because they don’t have transportation.
Air Charity Network
Air Charity Network provides access for people in need who are seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis. Air Charity Network serves all 50 states and its volunteer pilots utilize their own aircraft, fuel and time to provide free air transportation to medical facilities for citizens who are financially distressed or otherwise unable to travel on public transportation.
Join a Clinical Trial
A Pilot Clinical Trial of Paricalcitol for Chronic Pancreatitis (ALLIANCE)
The proposed trial will examine the feasibility of testing the effect of the vitamin D analog, paricalcitol (also known as Zemplar), on health-related quality of life, imaging, and biomarkers in patients with chronic pancreatitis (CP).
Johns Hopkins Pancreatitis Pain Program
Johns Hopkins Pancreatitis Pain Program is a research and patient care program that brings pain relief and hope to patients with chronic pain caused by pancreatitis. In this program, a team of experts provide new pain treatments to help improve patients’ quality of life.
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