Pancreatitis Patient Stories
Your Story Matters
At the heart of our work are the stories of those who have experienced pancreatitis firsthand, along with their families impacted by the disease. We are inspired by the resilience and courage of those who have faced the challenges of pancreatitis, and we believe that by sharing their stories, we can raise awareness, foster compassion, and drive progress in finding a cure.

Rhiannon’s Pancreatitis Story: Diagnosing Hereditary Pancreatitis
Rhiannon Bending, 31, Shares Her Story with Hereditary Pancreatitis Although Rhiannon’s father had chronic pancreatitis, doctors were unaware that hereditary pancreatitis can be passed down

Ashlynn’s Pancreatitis Story: Chronic Pediatric Pancreatitis and Chronic Pain
Ashlynn Nieve, 18, Shares Her Story with Pediatric Pancreatitis Chronic pediatric pancreatitis patient Ashlynn Nieve (18) talks about how long she had to wait for

Rohit’s Pancreatitis Story: Avoiding Pancreatitis Complications and Seeking Proactive Care
My First Pancreatitis Complications My first (diagnosed) pancreatitis complications occurred in 1998 after I had eaten lunch. It was a shooting pain that rendered me

Eric’s Pancreatitis Story: My Experience with Meditation for Pain Management
The Challenge: Intense Chronic Pain from Pancreatitis Dealing with chronic pancreatitis has been perhaps the biggest challenge in my life. I am luckier than most

Rohit’s Pancreatitis Story: My Experience with Pancreatic Enzymes (PERT)
I read Liz’s blog and her journey with exocrine pancreatic insufficiency (EPI) resonated with my own experience. The one difference – since the diagnosis, seven

Elizabeth’s Pancreatitis Story: My Experience with Pancreatic Enzymes and Pancreatitis
My journey with pancreatitis started when I was about 10 years old. Throughout my years in school (elementary, middle and high school), I was misdiagnosed

Laura’s Pancreatitis Story: Seeking Treatment for Chronic Pancreatitis
Stabbing Pain Leads to Acute Pancreatitis Diagnosis In December 2018, Laura Perry, a 24-year old previously-healthy law student, began experiencing abdominal pain after returning home

Kayla-Ann Keagy’s Pancreatitis Story: 2018 LA Party Courage Award Recipients
At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals

Diana & Diego’s Pancreatitis Stories: 2018 LA Party Courage Award Recipients
At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals living