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GeneticsPatient ResourcesPatient Stories
July 8, 2021

Patient Story: Diagnosing Hereditary Pancreatitis: Rhiannon’s Story

Rhiannon Bending, 31, shares her story with hereditary pancreatitis Although Rhiannon's father had chronic pancreatitis, doctors were unaware that hereditary pancreatitis can be passed down through genetics and kept reassuring that her that she will not suffer from the disease. Genetic testing gave her the answers she so badly needed-- she has hereditary chronic pancreatitis. Rhiannon shares the effect this…
Sofia Garcia
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Exocrine Pancreatic InsufficiencyPatient ResourcesWebinarsWebinars: Exocrine Pancreatic Insufficiency (EPI) & Pancreatic Enzymes
March 8, 2019

Webinar: Pancreatic Enzyme Replacement Therapy

Busting the Myths about Pancreatic Enzymes for Pancreatitis and EPI New Information for Pancreatitis Patients on Treating EPI Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presents Busting the Myths about Pancreatic Enzymes for Pancreatitis. In this webinar, the fifth in Mission: Cure’s Patient and Family Webinar Series, Dr. Freedman explains: What causes exocrine pancreatic insufficiency…
Megan Golden
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pancreatitis diagnosis webinar
NewsPatient ResourcesSymptoms of PancreatitisWebinars
March 10, 2021

Watch our Webinar on Pancreatitis Diagnosis: Living With Pancreatitis

Living with Pancreatitis: Navigating Your Diagnosis https://www.youtube.com/watch?v=1s0xKVDX8qY On Mission:Cure's March 10th, 2021 webinar,  Interventional Gastroenterologist and Endosonographer Dr Eli Penn of Atrium-Navicent Health System discussed best practices for patients who are searching for an accurate diagnosis that explains their gastrointestinal symptoms. Melissa Mutz, a wife, mother, and chronic pancreatitis survivor, shares her story and walks us through how to achieve an…
Gabriela Gil
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DiagnosisPatient Resourcestoolkits
August 26, 2021

Pancreatitis Diagnosis Toolkit

Many patients struggle with getting an accurate pancreatitis diagnosis. Patients recount being dismissed by doctors, spending thousands of dollars on tests, being told they are not really sick, and waiting years for a diagnosis. Our pancreatitis diagnosis toolkit provides an overview about chronic pancreatitis and lists common symptoms and typical tests. To learn more which tests to request from your…
Sofia Garcia
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NewsPatient Resources
February 4, 2021

Patient Advocacy Resources

Air Charity Network Air Charity Network provides access for people in need who are seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis. Air Charity Network serves all 50 states and its volunteer pilots utilize their own aircraft, fuel and time to provide free air transportation to medical facilities for citizens who are financially distressed or…
Sofia Garcia
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Hereditary pancreatitis patient, Christine Cataldo, with her family.
Patient ResourcesPatient Stories
September 5, 2018

Living with Pancreatitis: The Importance of Hope

Interview with Chronic Pancreatitis Patient, Christine Cataldo  In the summer of 2018, Mission: Cure’s intern, Gabriela Gil, sat down with Christine Cataldo, a patient volunteer with Mission: Cure, to learn more about Christine’s experiences living with chronic pancreatitis. Diagnosed with pancreatitis linked to the PRSS1 genetic mutation in 2002, Christine shared stories how her condition was identified, discussed her family’s…
Gabriela Gil
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Patient Resources
November 15, 2018

“Is Pancreatitis in Your Genes?” Webinar Presentation Slides

On November 13th, Mission: Cure hosted an informational webinar for chronic and recurrent acute pancreatitis patients, their families and clinicians on new genetic discoveries related to this disease. Below are the slides for the presentations by Dr. David Whitcomb of the University of Pittsburgh Medical Center and Dr. Mark Haupt of Ariel Precision Medicine, two award-winning and innovative leaders, and a…
Megan Golden
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