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July 8, 2021

Patient Story: Diagnosing Hereditary Pancreatitis: Rhiannon’s Story

Rhiannon Bending, 31, shares her story with hereditary pancreatitis Although Rhiannon's father had chronic pancreatitis, doctors were unaware that hereditary pancreatitis can be passed down through genetics and kept reassuring that her that she will not suffer from the disease. Genetic testing gave her the answers she so badly needed-- she has hereditary chronic pancreatitis. Rhiannon shares the effect this…
Sofia Garcia
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Diagnosis
August 26, 2021

Pancreatitis Diagnosis Toolkit

Many patients struggle with getting an accurate pancreatitis diagnosis. Patients recount being dismissed by doctors, spending thousands of dollars on tests, being told they are not really sick, and waiting years for a diagnosis. Our pancreatitis diagnosis toolkit provides an overview about chronic pancreatitis and lists common symptoms and typical tests. To learn more which tests to request from your…
Sofia Garcia
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February 4, 2021

Patient Advocacy Resources

Air Charity Network Air Charity Network provides access for people in need who are seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis. Air Charity Network serves all 50 states and its volunteer pilots utilize their own aircraft, fuel and time to provide free air transportation to medical facilities for citizens who are financially distressed or…
Sofia Garcia
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Hereditary pancreatitis patient, Christine Cataldo, with her family.
September 5, 2018

Living with Pancreatitis: The Importance of Hope

Interview with Chronic Pancreatitis Patient, Christine Cataldo  In the summer of 2018, Mission: Cure’s intern, Gabriela Gil, sat down with Christine Cataldo, a patient volunteer with Mission: Cure, to learn more about Christine’s experiences living with chronic pancreatitis. Diagnosed with pancreatitis linked to the PRSS1 genetic mutation in 2002, Christine shared stories how her condition was identified, discussed her family’s…
Gabriela Gil
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Diana and Diego Miranda
October 12, 2018

Diana & Diego Miranda: Courage Award Recipients Tell Their Stories

At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals living with chronic pancreatitis. While the event as a whole was a verifiable success, raising over $150,000 to support the search for a cure, it was the stories of Matthew Musto (aka blackbear), Kayla-Ann Keagy,…
Megan Golden
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Patient Stories
October 15, 2018

Kayla-Ann Keagy: Courage Award Recipient Tells Her Story

At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals living with chronic pancreatitis. While the event as a whole was a verifiable success, raising over $150,000 to support the search for a cure, it was the stories of Matthew Musto (aka blackbear), Kayla-Ann Keagy,…
Megan Golden
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November 15, 2018

“Is Pancreatitis in Your Genes?” Webinar Presentation Slides

On November 13th, Mission: Cure hosted an informational webinar for chronic and recurrent acute pancreatitis patients, their families and clinicians on new genetic discoveries related to this disease. Below are the slides for the presentations by Dr. David Whitcomb of the University of Pittsburgh Medical Center and Dr. Mark Haupt of Ariel Precision Medicine, two award-winning and innovative leaders, and a…
Megan Golden
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