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Image of person holding a phone with the AvoMD exocrine pancreatic insufficiency tool.

Mission: Cure and AvoMD Partner to Improve Exocrine Pancreatic Insufficiency Diagnosis and Treatment

(New York, New York) – Mission: Cure in partnership with AvoMD, a software company that translates clinical evidence into the workflow, has developed a tool for the point-of-care to improve treatment for patients with exocrine pancreatic insufficiency (EPI). The interactive EPI tool is available for free in all electronic health records (EHRs) on the AvoMD […]

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New Clinical Study Aims To Detect Pancreatic Cancer Earlier in At-Risk Patients

Certain people with chronic pancreatitis are at a high risk of getting pancreatic cancer. In fact, people with pancreatitis and PRSS1 mutations (also known as hereditary pancreatitis) should get screened for pancreatic cancer every year. Unfortunately, for now, there isn’t a test to detect pancreatic cancer early on. To screen for pancreatic cancer, doctors currently

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Image of children with pancreatitis playing with rope at Camp Hope.

Camp Hope: Rebecca’s Wish Brings Summer Fun to Pediatric Pancreatitis Patients

For many children, summer camp is a highlight of their year – a time to make new friends, explore the great outdoors, and create lifelong memories. But for those battling pediatric pancreatitis, these experiences can be overshadowed by the challenges of their illness. Luckily, a summer program specifically designed for pancreatitis is available to pediatric

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Rare Disease Day 2023: Bringing Awareness to Those Living With A Rare Disease

There’s an old medical saying that doctors are taught while in medical school: “When you hear hoof beats, think horses, not zebras.” This medical slang teaches doctors that they should assume more common diseases are causing their patient’s symptoms before exploring less common diagnoses. This February, however, is all about the zebras – those whose

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Image of Mission: Cure staff at Pancreasfest

Getting Ready to Test New Pancreatitis Treatments: News from PancreasFest

When will we have new treatments for pancreatitis? In July, Mission: Cure met with researchers and doctors to discuss this important question. Mission: Cure CEO Megan Golden, VP for Translational Research Lola Rahib, and the summer interns attended PancreasFest 2022 at the University of Pittsburgh. PancreasFest is an annual conference that brings together researchers who

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New Collaboration with Johns Hopkins to Treat Pancreatitis Pain

Mission: Cure has provided initial funding to Johns Hopkins Medicine to launch the new Pancreatitis Pain Research Center. Mission: Cure will work with Johns Hopkins to establish the Pancreatitis Pain Research Program. The goals for the pancreatitis pain program are: To study and treat specific types of pain associated with chronic pancreatitis To create an

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Three scientists working together on research.

Mission: Cure Selected to Join The Chan Zuckerberg Initiative’s Rare As One Network

We are delighted to announce that Mission: Cure has been selected as one of 20 patient-led organizations to join the Rare As One Network. The Network will provide much-needed support by offering new tools, funding, and capacity-building support and training that will further Mission: Cure’s work providing resources to patients and family members, building a better care model,

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