I see you. I see the struggle of chronic illness, I see the deeply intertwined web of psychological stress and reactions of the body, and I see the impact of the “care” provided by the medical system. As a fellow in pediatric gastroenterology, I have spent the last few years at the bedsides of my […]
PTSD in Kids with Pancreatitis Read More »
The definition of chronic pain will feel familiar to any chronic pancreatitis patient: ongoing or recurrent pain, lasting beyond the usual course of acute illness or injury or more than 3 to 6 months, and adversely affecting the individual’s well-being. In fact, this type of pain—persistent, intense, debilitating—is a defining feature of chronic pancreatitis. Mission:
Managing Chronic Pain in Pancreatitis Read More »
As many of you may know, Mission: Cure recently launched its first patient survey to gain real-world patient perspectives on living with the disease. Although the survey is ongoing, we are also excited to share some preliminary insights that we have gathered from the first 145 responses. We are excited to present a white paper
Pancreatitis Patient Survey: Final Report Read More »
Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presented on Mission: Cure’s Pancreatitis Patient Webinar on Exocrine Pancreatic Insufficiency (EPI) and Pancreatic Enzyme Replacement Therapy (PERT). EPI is one of the symptoms of pancreatitis. Enzymes and PERT are a confusing but critically important part of chronic pancreatitis treatment. If
Expert Q&A: EPI and Pancreatic Enzymes Read More »
As a researcher and clinician, I’m incredibly excited by advances in our understanding of pancreatitis and their potential to help pancreatitis patients. Pancreatitis patients suffer terrible pain, along with other symptoms, and are often frustrated at the lack of effective treatments. But today, thanks to advances in genomics (the study of genes and their function),
Genetic Testing for Pancreatitis: What We Know Now Read More »
We had so many questions during our webinar on the genetics of pancreatitis, which can be viewed by clicking here, that we could not answer them all during the session. We didn’t want to leave questions unanswered, so here are Dr. Mark Haupt and Dr. David Whitcomb’s answers to the questions we didn’t get to.
Webinar Q&A: Is Pancreatitis in Your Genes? Read More »
On November 13th, Mission: Cure hosted an informational webinar for chronic and recurrent acute pancreatitis patients, their families and clinicians on new genetic discoveries related to this disease. Below are the slides for the presentations by Dr. David Whitcomb of the University of Pittsburgh Medical Center and Dr. Mark Haupt of Ariel Precision Medicine, two award-winning
“Is Pancreatitis in Your Genes?” Webinar Presentation Slides Read More »
Chronic pancreatitis (CP) is a poorly understood disease, to the immense frustration of patients, clinicians, and researchers. There is good news consensus guidelines on chronic pancreatitis pain have been developed by an international team of experts. The task now is to make clinicians and patients aware of them. The Challenge of Managing Chronic Pancreatitis Pain
New Guidelines for Managing the Pain of Chronic Pancreatitis Read More »
I’ve been researching and treating chronic pancreatitis for decades, so I know firsthand what a complicated disease it is and how many unknowns remain. Answers are finally beginning to emerge, but the research is still very preliminary, underscoring how much more we need to learn. It has become increasingly clear that chronic pancreatitis (CP) is
Pancreatitis and Alcohol: What’s the Real Connection? Read More »
Before You Go
Stay up-to-date on the latest Mission: Cure news and developments in pancreatitis care.