All Posts By

Megan Golden

Diana and Diego Miranda
Blog
October 12, 2018

Diana & Diego Miranda: Courage Award Recipients Tell Their Stories

At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals living with chronic pancreatitis. While the event as a whole was a verifiable success, raising over $150,000 to support the search for a cure, it was the stories of Matthew Musto (aka blackbear), Kayla-Ann Keagy,…
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News
September 11, 2018

blackbear Will Accept Courage Award at Mission: Cure LA Fundraiser to Cure Pancreatitis

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Blog
July 26, 2018

Preliminary Results of Patient Survey and Continuing Project

As many of you may know, Mission: Cure recently launched its first patient survey to gain real-world patient perspectives on living with the disease. Although the survey is ongoing, and we ask that patients who have not completed the survey take a moment to do so, we are also excited to share some preliminary insights that we have gathered from…
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Blog
July 13, 2018

Introducing Mission: Cure’s First Patient Survey

Here at Mission: Cure, we strive to bring the patients’ voices to the forefront of our work. Our mission is to cure chronic and recurrent acute pancreatitis by using an innovative financing model to incentivize research and development. We are asking for you, patients and caregivers, to take a couple of minutes to fill out our patient survey. We believe that…
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News
July 11, 2018

N=1 Drug Discovery Pact: Mission: Cure’s New Partnership with Perlara

Mission: Cure believes that new innovations in medical research are key to achieving our goal of curing chronic pancreatitis. For this reason, we strive to leverage and support advances in genomics and precision medicine and aim to collaborate with forward-thinking and mission-driven organizations. Today, we are excited to announce our partnership with Perlara, a rare disease drug discovery platform company working with…
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If you or a loved one is experiencing pain due to chronic pancreatitis, here is an opportunity to get your voice heard and potentially shape the drug development and regulatory process! On Monday July 9th, 2018 from 10:00am to 4:00pm, FDA is hosting a public meeting on Patient-Focused Drug Development for Chronic Pain. The goal of this meeting is to better understand and incorporate patients’ voice in drug development and evaluation for chronic pain. FDA is interested in hearing about 1) the symptoms of chronic pain that matter most to patients and 2) patients’ perspectives on current approaches to treatment of chronic pain, particularly from those using analgesic medications, other medications, and non-pharmacological interventions or therapies. Due to limited capacity, in-person registration has closed, but registration to attend via webcast is still open. Webcast participants can also provide input through virtual comments. We call upon interested chronic pancreatitis patients to find more information and register at https://bit.ly/2HkylYZ and bring the much-needed voice of chronic pancreatitis patients to the meeting.
News
June 25, 2018

Register for the FDA Public Meeting on Chronic Pain!

To register and see more information regarding the session on chronic pain, please visit: https://bit.ly/2HkylYZ. On the day of the meeting, registered patients will be able to access the webcast here. Get your voice heard: If you are unable to making the public meeting, you can still contribute through written comments on the Federal Register Notice for this meeting that will…
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NewsWebinars
April 20, 2018

Pediatric Pancreatitis: The Latest Research

On April 18th, Mission:Cure and NPF hosted the first webinar in our new pancreatitis webinar series. International pediatric pancreatitis expert Dr. Aliye Uc of the University of Iowa presented the latest research on pancreatitis in children. Please click on this link to listen to the webinar. We hope you’ll join us for future pancreatitis webinars. Please join our mailing list…
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NewsWebinars
March 21, 2018

Upcoming Webinar on Pediatric Pancreatitis

Does your child have pancreatitis? Mission: Cure and the National Pancreas Foundation invite you to join us for the first webinar in our new Pancreatitis Webinar Series Pediatric Pancreatitis: The latest on causes, treatments, outcomes & research. Q & A too! Dr. Aliye Uc, MD, Professor of Pediatric Gastroenterology, Professor of Radiation Oncology, University of Iowa and leader of the…
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