האתגר: כאב כרוני עז מדלקת הלבלב התמודדות עם דלקות כרוניות בלבלב הייתה האתגר הגדול ביותר בחיי. אני בר מזל מרוב החולים המחלה – אני עובד במשרה מלאה, עושה את הפעילויות החשובות לי, מתאשפז לעתים רחוקות, ומרגיש מבורך על כך שיש לי מערכת תמיכה נפלאה – אפילו עד כדי כך שיש לי אחות שמשימתה …
Rhiannon Bending, 31, Shares Her Story with Hereditary Pancreatitis Although Rhiannon’s father had chronic pancreatitis, doctors were unaware that hereditary pancreatitis can be passed down through genetics and kept reassuring that her that she will not suffer from the disease. Genetic testing gave her the answers she so badly needed– she has hereditary chronic pancreatitis. …
Rhiannon’s Pancreatitis Story: Diagnosing Hereditary Pancreatitis Read More »
https://youtu.be/yA0nteCFZFY On June 23rd, 2021, Mission: Cure held a webinar with Ariel Precision Medicine to shed light on the connection between genetics and medication. Solomon Adams, Director of Bioinformatics and Genome Technologies discussed how your genes affect how certain medications (like antidepressants and pain medication) work and how you can work with your medical provider …
Genetics and Medication: How Your Genes Affect the Medications You Take Read More »
On June 19th of every year, we commemorate the end of slavery in the United States. In the last hundred years, the healthcare field has made great strides in treating disease, yet many people still receive poor and unequal care. Compared to white people in the United States, people of color have less access to …
Our Commitment to Diversity, Equity, and Inclusion Read More »
Mariel Priven is a rising junior at Tufts University majoring in Community Health and pursuing minors in Economics and Latin American Studies. Mariel is passionate about health equity, journalism, and learning languages. She joined Mission: Cure to contribute to its goals of developing effective patient-centered care and improving the lives of those with pancreatitis. Mariel …
Introducing Mission: Cure’s 2021 Summer Intern Cohort Read More »
Last year, the American College of Gastroenterology (ACG) published clinical guidelines to provide an evidence-based practical approach to the diagnosis and management of chronic pancreatitis for the general gastroenterologist. We, at Mission: Cure, commend the efforts of the authors and believe that these guidelines are an important step forward for pancreatitis patients who continue to …
Ashlynn Nieve, 18, Shares Her Story with Pediatric Pancreatitis Chronic pediatric pancreatitis patient Ashlynn Nieve (18) talks about how long she had to wait for her diagnosis, how her chronic pain often kept her from attending school and how she coped with prejudice and discrimination without losing hope. Ashylnn has been suffering from chronic pediatric …
Ashlynn’s Pancreatitis Story: Chronic Pediatric Pancreatitis and Chronic Pain Read More »
My First Pancreatitis Complications My first (diagnosed) pancreatitis complications occurred in 1998 after I had eaten lunch. It was a shooting pain that rendered me immobile. I was in excruciating pain and later learned I had been in a coma for a few hours. Doctors told me that I had suffered an episode of acute …
Many patients struggle with receiving an accurate pancreatitis diagnosis. Mission: Cure held a webinar on March 10th, 2021 to address the many concerns that patients have regarding their diagnosis, such as: Are pancreatitis and pancreatic cancer related? Can pancreatitis be cured? Which tests do I need to get done? You can watch the webinar here. …
The Challenge: Intense Chronic Pain from Pancreatitis Dealing with chronic pancreatitis has been perhaps the biggest challenge in my life. I am luckier than most with the disease – I can work full-time and do most of the activities that are meaningful to me, rarely have to be hospitalized, and feel blessed to have a …
Eric’s Pancreatitis Story: My Experience with Meditation for Pain Management Read More »
Before You Go
Stay up-to-date on the latest Mission: Cure news and developments in pancreatitis care.