Correct dosing of pancreatic enzymes is a big challenge for adults who suffer from EPI. We’ve heard from patients that once they receive they are told they have EPI, they are not guided or walked through what this means for them going forward. When are they supposed to take their pills? How do they know …
I read Liz’s blog and her journey with exocrine pancreatic insufficiency (EPI) resonated with my own experience. The one difference – since the diagnosis, seven years and counting – I continue to calibrate my enzyme dosage. Here is my experience with pancreatic enzymes. My first (diagnosed) acute pancreatitis attack happened in 1998 and I was …
Rohit’s Pancreatitis Story: My Experience with Pancreatic Enzymes (PERT) Read More »
https://www.youtube.com/watch?v=1s0xKVDX8qY On Mission: Cure’s March 10th, 2021 webinar, Interventional Gastroenterologist and Endosonographer Dr. Eli Penn of Atrium-Navicent Health System discussed best practices for patients who are searching for an accurate diagnosis that explains their gastrointestinal symptoms. Melissa Mutz, a wife, mother, and chronic pancreatitis survivor, shares her story and walks us through how to achieve …
Pancreatitis Diagnosis: Living With Pancreatitis Read More »
My journey with pancreatitis started when I was about 10 years old. Throughout my years in school (elementary, middle and high school), I was misdiagnosed with a “sensitive stomach.” My pain was not taken seriously by doctors. I was sent to several counselors while I was in college because, despite my symptoms, doctors believed that …
Elizabeth’s Pancreatitis Story: My Experience with Pancreatic Enzymes and Pancreatitis Read More »
Air Charity Network Air Charity Network provides access for people in need who are seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis. Air Charity Network serves all 50 states and its volunteer pilots utilize their own aircraft, fuel and time to provide free air transportation to medical facilities for citizens …
We are elated to announce that Healx, an AI-powered technology company that shares our passion for patient-centered care, has chosen to team up with Mission: Cure to help find a cure for chronic pancreatitis! Mission: Cure was chosen from among many rare disease organizations to be part of Healx’s Rare Treatment Accelerator Program (RTA) with …
During our 2020 Moments of Hope party, we asked patients to submit the names of care providers that gave them a Moment of Hope during their disease journey. Pancreatitis is a commonly misunderstood disease, even in the medical community. New science has revealed that chronic pancreatitis is not caused by alcoholism, but rather a combination of environmental and genetic factors – …
هو مرض معقد ومجهول من نواحي عديدة. بدأنا أخيرا بالحصول على بعض الإجابات، ولكن الأبحاث لا تزال تمهيديًة للغاية، وهذا دليل على مدى حاجتنا إلى تعلم المزيد. حيث أصبح واضحا وبشكل متزايد أن التهاب البنكرياس المزمن (CP) يسببه عوامل متعددة. وتختلف هذه العوامل من مريض إلى آخر وفي كيفية تفاعل هذه العوامل مع بعضها البعض. …
The Collaborative Alliance for Pancreatic Education and Research (CAPER) Board of Directors is delighted to announce the election of Eric Golden as Chair of the CAPER Board. Mr. Golden is the Founder and Managing Director of Fluential Partners, LLC, a boutique investment bank. Previously, he has served in roles ranging from CEO of a startup …
Mission: Cure Co-Founder Eric Golden Elected Chair of CAPER Board Read More »
Having chronic pancreatitis increases the risk of pancreatic cancer. According to Dr. Randall Brand, Gastroenterologist and head of the early pancreatic cancer detection program at the University of Pittsburgh Medical Center, people with chronic pancreatitis have approximately a five percent chance of developing pancreatic cancer over a 20-year period. [1] However, recent research has shown …
New Pancreatic Cancer Screening Guidelines: What Pancreatitis Patients Need to Know Read More »
Before You Go
Stay up-to-date on the latest Mission: Cure news and developments in pancreatitis care.