Pragya, an autoimmune pancreatitis patient, standing next to her mother and smiling.

Pragya’s Autoimmune Pancreatitis Story: The Power of Support & Hope

My journey with pancreatitis began with intense abdominal pain, relentless vomiting, and fever. Initially misdiagnosed as gastritis, I endured six months of endoscopies while my weight dropped from 67 kg to 40 kg (148 lbs to 88 lbs), and my creatinine levels soared due to excessive medication. 

A turning point came when a new doctor tested my amylase and lipase levels, followed by an MRCP scan that confirmed pancreatitis. At 20, with no history of alcohol use, this diagnosis was a shock. Further tests revealed it was autoimmune pancreatitis, marked by elevated IgG4 levels. Steroids worsened my health, and expensive treatments like Rituximab and Ulinastatin injections provided only temporary relief. 

Image of pancreatitis patient Pragya with her mother.

Despite numerous hospitalizations and persistent symptoms, my mom’s unwavering support kept me going. Her hope and strength have been my anchors, helping me transform from a depressed patient to someone who finds joy in life. Many of my dreams have been put on hold, but I’m learning to live happily despite the challenges

 

Learn more about Autoimmune Pancreatitis symptoms, diagnosis, and treatment with Dr. Yasmin Hernandez-Barco from Massachusetts General Hospital and Harvard Medical School.

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Your story matters. If you’re living with pancreatitis or caring for someone who is, your experience can inspire and empower others who are going through the same thing. That’s why we want to hear from you! Share your story with us by clicking the button below.

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